Two Heroes

My Dad was diagnosed with Lewy Body Dementia in the summer of 2006. Before that, he lived his life on his terms, did things his way. He was smart, self-taught, […]
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A life without cause is a life without effect

What do you mean he lost the car? He grew up in that town how could he misplace the car? This was the single biggest incident that had happened to […]
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My Hero

My father was the greatest person I have ever known. He was kind — I can never remember him saying a negative thing about anyone. He was funny — not […]
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La segunda infancia cruel

(English version of this story coming shortly…) Mi padre siempre fué un hombre fuerte,autodidacta,luchador,un hombre duro y recto en lo que al resto se refería y muy permisivo con el […]
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In the beginning…before LBDA

THE UNKNOWN – In 2002 my father was diagnosed with Lewy body disease (LBD) at the UC Davis Alzheimer’s Disease Center in Sacramento CA. We had no idea what LBD […]
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History repeats

We moved in with my grandma two weeks before my seventeenth birthday. My mom was determined to take care of her and keep her out of a nursing home. At […]
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This is not how I pictured it at 26

Mom was initially diagnosed with Alzheimers almost two years ago in February 2009. She was 63. I was 24 years old and recently engaged. We (my Dad, sister and I)were […]
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Daughter

On 2/11/11 my dad was brought to the hospital after a fall in the shower. After his wife noticed “jibberish” speech and recalling his orthostatic hypotension that had been occuring […]
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A Good, Clean, Healthy Life & then…

My wonderful husband was a high school track & football athlete. Served 3 yrs in the US Army, fathered 3 healthy children, loved Canadian cold water fishing & camping, didn’t […]
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When Did This All Happen?

I sit and think, “How did we get here?”…. I’m 21 now, my dad, 79 was diagnosed with LBD about 8 years ago. It started off with missing a step […]
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From planning a wedding to a funeral?

My fiance who is 63 was diagnosed with Parkinsons months ago. I noticed memory problems, simple things he couldn’t remember how to do. Then one night he saw “people” in […]
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August 6th, 2011

August 6th, 2011 Happy Birthday dear dad Today a party was to be planned Food, family, and friends Laughter, memories, and stories You were to turn 75 years old Your […]
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what have you done with my mom

My mother was diagnosed with Lewy Body in 2006. It is horrible. I don’t think I can describe everything that I feel. My mom no longer recognizes me. I feel […]
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split personalities

My husband and I were both suffering from Post Traumatic Syndrome when we lost our home in Katrina. We moved from New Orleans to Knoxville to be near our daughter. […]
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A Poem

My partner was diagnosed with Lewy Body this year(2011) in April. The rapid decline in his health and abilities have changed my life. Here is a short poem I wrote […]
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Living With Lewy

As with many, my husband, Jim, was diagnosed first with Parkinson’s in 1996 by his neurologist. Jim lived a fairly normal life except for falling a lot and he could […]
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August 6th

August 6th, 2011 Happy Birthday dear Dad Today a party was to be planned Food, family and friends Laughter, memories and stories You were to turn 75 years old Your […]
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Lewy Body Unknown for Years

Lewy Body Unknown for Years Our father had Lewy Body Dementia for at least 6 years without us realizing what was wrong. We thought his symptoms were just from normal […]
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Take 2

We moved in with my grandma two weeks before my seventeenth birthday. My mom was determined to take care of her and keep her out of a nursing home. At […]
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An epiphany

We just returned from the Cleveland Clinic. My husband’s meds weren’t changed, which is a good thing. Anytime they don’t need to increase anything, I always figure that’s good. While […]
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