Living With Lewy

As with many, my husband, Jim, was diagnosed first with Parkinson’s in 1996 by his neurologist. Jim lived a fairly normal life except for falling a lot and he could […]
Read More

August 6th

August 6th, 2011 Happy Birthday dear Dad Today a party was to be planned Food, family and friends Laughter, memories and stories You were to turn 75 years old Your […]
Read More

My Dad – Herb

Dad was such fun, even the Lewy Body dementia didn’t take that sparkle from his eye right up until near the end. He passed away January 10, 2011. It was […]
Read More

Most Amazing, Wife, Mom, Grandma

Grandma’s Last Fight A face that is always on my mind, A smile I have seen a million times, Two eyes that would light up the sky at night, Until […]
Read More

Lewy Body Unknown for Years

Lewy Body Unknown for Years Our father had Lewy Body Dementia for at least 6 years without us realizing what was wrong. We thought his symptoms were just from normal […]
Read More

Take 2

We moved in with my grandma two weeks before my seventeenth birthday. My mom was determined to take care of her and keep her out of a nursing home. At […]
Read More

An epiphany

We just returned from the Cleveland Clinic. My husband’s meds weren’t changed, which is a good thing. Anytime they don’t need to increase anything, I always figure that’s good. While […]
Read More

Making a Difference

In 2008, my husband suspected memory loss. I took care of him until a doctor insisted he take risperidone. Two days later he collapsed and went to hospital. That was […]
Read More

Racing Toward a Miracle

Racing Toward a Miracle I look for a lost piece of paper in my messy den, Happen across an envelope of pictures, A hiking trip to Banff five years previous, […]
Read More

undetected causes

A note from LBDA: One caregiving topic that isn’t addressed often in LBD is quality oral care. Infections and pain can worsen behavioral problems, so good dental hygiene and care […]
Read More

Daughter/Caregiver

My dad was diagnosed with LBD several years ago. It’s hard to see a once strong, independent, vibrant man slowly deteriorate He’s not used to family, friends, and caregivers to […]
Read More

The Lewy Body Roller Coaster

My mother – J.E.T – was originally diagnosed with Frontal-temporal Dementia in early 2011, but she has since been diagnosed with Lewy body dementia. However, I have used the word […]
Read More