Grandma’s Last Fight A face that is always on my mind, A smile I have seen a million times, Two eyes that would light up the sky at night, Until […]

Lewy Body Unknown for Years Our father had Lewy Body Dementia for at least 6 years without us realizing what was wrong. We thought his symptoms were just from normal […]

We moved in with my grandma two weeks before my seventeenth birthday. My mom was determined to take care of her and keep her out of a nursing home. At […]

We just returned from the Cleveland Clinic. My husband’s meds weren’t changed, which is a good thing. Anytime they don’t need to increase anything, I always figure that’s good. While […]

In 2008, my husband suspected memory loss. I took care of him until a doctor insisted he take risperidone. Two days later he collapsed and went to hospital. That was […]

Racing Toward a Miracle I look for a lost piece of paper in my messy den, Happen across an envelope of pictures, A hiking trip to Banff five years previous, […]

A note from LBDA: One caregiving topic that isn’t addressed often in LBD is quality oral care. Infections and pain can worsen behavioral problems, so good dental hygiene and care […]

My dad was diagnosed with LBD several years ago. It’s hard to see a once strong, independent, vibrant man slowly deteriorate He’s not used to family, friends, and caregivers to […]

My mother – J.E.T – was originally diagnosed with Frontal-temporal Dementia in early 2011, but she has since been diagnosed with Lewy body dementia. However, I have used the word […]