LBDA Lewy Line

LBD families and caregivers can connect directly on a regional basis, through the LBDA Lewy Line, featuring “Lewy Buddies.” Lewy Buddies are experienced LBD caregivers who share their time and experience with LBD families by:

  • Listening compassionately and confidentially to the challenges of LBD families and sharing their own personal experience with LBD
  • Offering emotional support
  • Referring families to additional LBDA programs and services as appropriate for their needs

When calling or emailing the LBDA Lewy Line, you will be connected with an experienced caregiver who can provide information on LBD and who can also share their personal experience and compassion. While Lewy Buddies are not able to provide medical advice and are not medical professionals, they are typically well informed about LBD through their personal experiences and volunteer training with LBDA.  They may also be able to help identify information and community resources concerning the diagnosis and care of a person with Lewy body dementia.

If you are seeking information on care options in your local area, please call Eldercare Locator at 1-800-677-1116 or visit their website by clicking here.

We are unable to provide referrals for residential facilities or home care agencies.

LBDA Lewy Line – 800-539-9767

For caregivers who do not have internet access or who wish to speak to someone, the toll-free accessline provides a link to experienced LBD caregivers. Please leave a message and an LBDA volunteer will return your call within 24-48 hours.

Please note that we are unable to return calls outside of the United States.

E–mail Support –

E-mail correspondence with LBDA allows caregivers with Internet access to ask questions, seek information, and connect via e-mail with other experienced LBD caregivers.

For other questions and concerns, please see our Contact Us page.