About LBDA

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.


Our Vision

A cure for Lewy body dementias and quality support for those still living with the disease.

Our Mission

Through outreach, education and research, we support those affected by Lewy body dementias.

Our Commitment

LBD is a disease that does not discriminate. LBDA is committed to diversity, equity and inclusion in research, and making access to clinical care and support accessible to all.


LBDA was formed by a group of caregivers who met in an online LBD caregiver support group. Discussions about the need of support for LBD caregivers and the lack of public awareness about LBD led to the organization’s incorporation. The directors of the LBDA Board are located throughout the United States, and LBDA volunteers are from the United States, Canada, and the United Kingdom. The association consists of a dedicated group of people from all walks of life who understand the struggles of other caregivers due to their personal LBD experiences.