About LBDA

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.


Our Vision

A cure for Lewy body dementias and quality support for those still living with the disease.


Our Mission

Through outreach, education and research, we support those affected by Lewy body dementias, their families and caregivers. We are dedicated to raising awareness and promoting scientific advances.


Our Commitment

LBDA is committed to diversity, equity and inclusion in research, and increasing access to clinical care and support for all.



LBDA was formed by a group of caregivers who met in an online LBD caregiver support group. Discussions about the need of support for LBD caregivers and the lack of public awareness about LBD led to the organization’s incorporation. The directors of the LBDA Board are located throughout the United States, and LBDA volunteers are from the United States, Canada, and the United Kingdom. The association consists of a dedicated group of people from all walks of life who understand the struggles of other caregivers due to their personal LBD experiences.


LBDA Diversity Statement

LBD is a disease that does not discriminate. It has and will continue to affect individuals from every gender identity, race, religion, sexual orientation, and socioeconomic background. Because of this, our mission continues to focus on serving ALL individuals affected by LBD.   

To support this mission, we are committed to fostering an environment that supports and celebrates diversity, equity, and inclusion.   

It is imperative that our organization continues to be intentional in growing our understanding of the challenges faced by individuals living with LBD, and work to understand why some are more disproportionately impacted by the economic and resource barriers associated with the disease than others. 

LBDA is committed to advocating for equity and inclusion in research and making access to clinical care and support accessible to all. We believe that when our staff and volunteers feel supported and empowered, it spreads to the community we serve.  And that is when our organization is operating at its best.