The Lewy Body Dementia Association (LBDA), a 501(c)(3) nonprofit organization, is the leading national organization dedicated to improving the lives of those living with Lewy body dementia (LBD), their families and care partners. LBD is the second most common form of neurodegenerative dementia and affects approximately 1.4 million people in the United States alone.
Our Vision
A world where living with Lewy is the same as living well.
Our Mission
To optimize the quality of life for those affected by Lewy body dementia, we accelerate awareness, advance research for early diagnosis and improved care, and provide comprehensive education and compassionate support.
Our Commitment
LBDA is committed to diversity, equity and inclusion in research, and increasing access to clinical care and support for all.
History
LBDA was formed by a group of caregivers who met in an online LBD caregiver support group. Discussions about the need of support for LBD caregivers and the lack of public awareness about LBD led to the organization’s incorporation. The directors of the LBDA Board are located throughout the United States, and LBDA volunteers are from the United States, Canada, and the United Kingdom. The association consists of a dedicated group of people from all walks of life who understand the struggles of other caregivers due to their personal LBD experiences.
LBDA Diversity Statement
LBD is a disease that does not discriminate. It has and will continue to affect individuals from every gender identity, race, religion, sexual orientation, and socioeconomic background. Because of this, our mission continues to focus on serving ALL individuals affected by LBD.
To support this mission, we are committed to fostering an environment that supports and celebrates diversity, equity, and inclusion.
It is imperative that our organization continues to be intentional in growing our understanding of the challenges faced by individuals living with LBD, and work to understand why some are more disproportionately impacted by the economic and resource barriers associated with the disease than others.
LBDA is committed to advocating for equity and inclusion in research and making access to clinical care and support accessible to all. We believe that when our staff and volunteers feel supported and empowered, it spreads to the community we serve. And that is when our organization is operating at its best.