About LBDA

The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances. The Association’s purposes are charitable, educational, and scientific.

Our Vision

A cure for Lewy body dementias and quality support for those still living with the disease.

Our Mission

Through outreach, education and research, we support those affected by Lewy body dementias.


LBDA was formed by a group of caregivers who met in an online LBD caregiver support group. Discussions about the need of support for LBD caregivers and the lack of public awareness about LBD led to the organization’s incorporation. The directors of the LBDA Board are located throughout the United States, and LBDA volunteers are from the United States, Canada, and the United Kingdom. The association consists of a dedicated group of people from all walks of life who understand the struggles of other caregivers due to their personal LBD experiences.


2018 IRS Form 990
2017-2018 Annual Report
2017 IRS Form 990
2016-2017 Annual Report
2016 IRS Form 990
2015 IRS Form 990
2014 IRS Form 990
2013 IRS Form 990
2011-2012 Annual Report
2012 IRS Form 990
2011 IRS Form 990
2010 IRS Form 990
2009-2010 Annual Report
2009 IRS Form 990
2008 Annual Report
2008 IRS Form 990
2007 Annual Report
2007 IRS Form 990
2006 Annual Report
2006 IRS Form 990
2005 Annual Report
2005 IRS Form 990
2004 Annual Report
2004 IRS Form 990