Volunteers are the cornerstone of our organization and are vital to raising awareness in the communities in which they live and work. Our team is composed of volunteers throughout the country who give their time and expertise to help support those affected by Lewy body dementias.

Complete the volunteer application

For more information on how to become an LBDA volunteer, contact us by email at lendahand@lbda.org.

Volunteer Opportunities | FAQs

Volunteer Opportunities

Families need your help today.

LBD affects an estimated 1.4 million people living in the U.S. LBD is often misdiagnosed as a psychiatric disorder or another form of dementia. Most of these people have partners, family, friends and other loved ones whose lives are also impacted by this disease. You can help.

Questions? Contact LBDA at lendahand@lbda.org.

Community Fundraising Event Organizer

Host a fundraising event, in-person or virtually, to raise donations and awareness for LBDA.  These events can be centered around a favorite pastime – such as golfing, cooking, or running; many fundraising events are in a loved one’s honor.

Community Event Support

Attend organized community fundraising and awareness events to support the organizer and LBDA in activities such as tabling, registration, set-up, clean-up, and any other needs specific to that event.


Participate in peer-to-peer fundraising and/or online donation pages for LBDA with no event attached to the giving.

Facebook Moderator

Lewy Body Dementia Association offers virtual support through their closed Facebook groups.   While LBDA Support staff serves as administrators of these groups, volunteer moderators help to keep the groups safe and facilitate supportive discussions.

Lewy Buddy

Provide telephonic support following initial connection with LBDA support staff.  Volunteers should be typically available during business hours, and not used for crisis or case management.  Each phone call will last for approximately 15 mins- 1 hour.  Two-year commitment and a connection to Lewy Body Dementia is required.

Support Group Facilitator (SGF)

Lead virtual, in-person, or hybrid support meetings for those diagnosed/symptomatic (as appropriate), care partners, and/or loved ones. The majority of groups have remained virtual or hybrid. Most groups meet monthly, bi-monthly, or quarterly for about one to two hours.  Groups range in size from 5-20 individuals per meeting.  Two-year commitment and a connection to Lewy Body Dementia is required.

Special Projects

The Lewy Body Dementia Association has short-term projects which require the support of volunteers.  These opportunities may include: participating on a discussion panel at an event, advocacy through presentations, participating in a research opportunity or discussion, or sharing stories as a representative of the LBD community.




What is the Lewy Body Dementia Association?

LBDA is a nonprofit 501(c)(3) charitable organization, dedicated to increasing awareness of Lewy body dementia, providing outreach to families worldwide, and encouraging research.

What are the volunteer requirements?

Volunteers must be a minimum of 18 years of age or have parental knowledge and consent. Some volunteer positions require at least a  one-year commitment to LBDA to assure continuity and stability of our services. If the volunteer position requires a time commitment, this will be discussed during the application process.

How can I become a volunteer?

After you have completed the volunteer application, an LBDA representative will contact you to discuss the volunteer opportunity that is right for you.