Stories Archive - Page 6 of 12 - Lewy Body Dementia Association

My Mom, LBD and Tamiflu.

My Mom is 93 years old, was diagnosed with LBD 3 1/2 years ago by her geriatric physician. On 3/18/17, the nursing home where my Mom resides started giving Tamiflu […]

Natanya’s memory

Today would have been my grandma's 87th birthday. Gardenia buds all over the east coast, tight in their glossy green cocoons, tell that it's that time of year again. Soon […]

Colleen’s Story

I am a single 55 year young lady who loves life, and this is my story: I was diagnosed with LBD September 2014, after being diagnosed with MCI (mild cognitive […]

Swanny’s life story

Evelyn Swanhild Halvorsen was born in Brooklyn, NY in 1936. “Made in America with 100% Norwegian parts” is what she would say. Her parents were Norwegian immigrants…her father a ship builder, […]

Father and Son

Hi my name is Ron Hansen and I am 53 and married to Lynda, dad to Katharine (Kate) and Sarah and son to Gary and Beverly Hansen. As a native […]

My Dad

Hello, My 81 years old (and 11 months) dad lost his battle with LBD on 2/28/17. We all know what a horrific disease it is and what it can do. […]

What could we have done?

My Mom passed away from Lewy body dementia last week. We found it challenging to learn about the disease. In particular what was the best treatment to help her make […]

Aging with Dignity with LBD

In my case, I intervened in my mother, Linda's life 14 years ago, because "something was just not right." She stopped eating right, her house was a mess, she was […]

Blame it on Lewy?

Strong, brilliant and handsome is how I would have described my father. As a young man, he was a competition weight lifter, winning numerous awards and titles. He became a […]

Caregiving for My Wife

My wife Maria recently passed away on January 8th, 2017. It began in 2007 after I noticed she was having trouble walking. She had suffered a stroke in May 2004 but […]

Our Family’s Journey with LBD

I can't remember the point we realized that something was amiss with Mum; I just recall it seemed to happen quickly. She was eventually diagnosed with dementia with Lewy bodies […]

Blame it on Lewy?

I wrote this story for my father and for all those who are sadly misdiagnosed. I lost my father to something horrible that changed him from a strong, brilliant, handsome […]

The Trial of My Life

For whatever reason, Lewy body dementia (LBD) clinical trials on new medications are rare. Those of us in the early stages need to embrace the opportunity to participate in trials […]

Close Caring

Today, I am blessed by having a Visiting Angel named Shannon who was also an alcoholic, although I am still working on her to quit the cigarettes. Since my own […]

My Grandpa, My Hero

Our sixteen year old grandson wrote this for his speech class recently. I thought you might want to share it with other readers. Thanks, Grandma Long Who do you think […]

Mom’s Poem to Dad

My father was diagnosed with Lewy Body Dementia in July 2016 and passed away at 71 years old on October 2, 2016. My mother wrote this poem about him: I Didn't […]

My Hero – My Grandpa

Who do you think of when you hear the word hero? Maybe famous athletes, authors, or even politicians. My hero is a little more ordinary, my grandpa Long. My […]

The Crux of the Matter

When my wife and I first received the diagnosis of dementia with Lewy bodies, it was not as much of a shock; nor was it a surprise. After 18 months […]

Lewy Body Dementia: One Day at a Time

Wednesday night I took the plunge and headed into the uncharted waters of a Lewy Body Dementia support group. I was thankful to have my good friend Leslie by my […]

Gone Too Soon

My husband of thirty-three years passed away last October of Lewy Body Dementia. It apparently began to reveal itself with sleep disturbances going back about eight years ago. In the […]