Never Give Up: My father’s legacy
A little over a month ago, my parents picked up and moved down to Florida. It happened very fast and was decidedly the best decision for everyone. It has allowed […]
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Single mother of 3
My husband Phil and I have been married for 15 years. We met and started our family later in life than most. He is now 51 years old and our […]
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Why we have to be educated
Three weeks ago my husband had an episode (like a seizure but we’re not sure yet) and the doctor who saw him (at a major teaching hospital) did not know […]
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Gone a Year, Not Forgotten
It’s a year ago next week my dear husband Ben passed away after four years with LBD. I knew something was terribly wrong when I found him at the back […]
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My husband is at rest now
I met my husband about 10 years ago. We got married in 2006 and then in 2009 we found out he had Lewy body… We just lost him on Aug […]
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Trying to Remember Our Lives Before Lewy Body
Sept. marked one year since my husband of 26 years Mike passed away from Lewy Body Dementia. The previous three years were the hardest of my life. Mike’s symptoms really […]
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The Journey
To all those who stories I have read today my heart goes out to you and your love one. Even twenty months later it is still difficult to review our […]
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A Fast Onset LBD Journey: He Is Still In There
Dad started working when he was 10. You see, many little boys. born in the Great Depression and growing up though the WWII years started looking for their first pennies […]
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Maxine – an acrostic poem
Maxine L osing you to this disease is beyond painful and paralyzing E ach day wondering what will be… W aking up with angst and longing to have real conversation […]
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He Always Knows
Funny, smart, caring not a mean bone in his body. We are a blended marriage; now married for 17 years. John is very generous and I, being independent felt a […]
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Caregiver
My husband, George, passed away on Nov. 22, 2013 from LBD. He had been diagnosed with Parkinson’s Disease in Nov., 2005. From the beginning he had experienced dreams in which […]
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My Dad My Hero
I lost my Dad June 28th this year. He was 62 years old and supposed to walk me down the aisle this year. As I plan my wedding I can […]
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The dog was a Capgras* victim!!
Oh! The light has shed! Early on in the journey, my mother had frantically called me from her condo to tell me that the groomer picked up Sophie and never […]
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For Love of the Game
My mother and I walked down the halls of the assisted living home. She turns to me and mustered up the words any five year old would, “What time is […]
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Two Heroes
My Dad was diagnosed with Lewy Body Dementia in the summer of 2006. Before that, he lived his life on his terms, did things his way. He was smart, self-taught, […]
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A life without cause is a life without effect
What do you mean he lost the car? He grew up in that town how could he misplace the car? This was the single biggest incident that had happened to […]
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When Did This All Happen?
I sit and think, “How did we get here?”…. I’m 21 now, my dad, 79 was diagnosed with LBD about 8 years ago. It started off with missing a step […]
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what have you done with my mom
My mother was diagnosed with Lewy Body in 2006. It is horrible. I don’t think I can describe everything that I feel. My mom no longer recognizes me. I feel […]
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split personalities
My husband and I were both suffering from Post Traumatic Syndrome when we lost our home in Katrina. We moved from New Orleans to Knoxville to be near our daughter. […]
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