Privacy and Security
LBDA is committed to protecting the privacy and personal information of individuals who contact the Association. Information collected by LBDA is for the sole purpose of furthering the Association’s mission, and will not be sold, rented or traded. The only personal information collected by the LBDA is that which is freely provided by contact through phone calls, mail, donations or our website. Personal information is stored in a secure environment and access only by authorized personnel with a legitimate and specific business purpose. By providing information, you consent to the collection, and understand that it may be used by Association to make further contact. To opt out of any or all methods of contact, follow the instructions on literature, if provided, or notify us by email (see below, by telephone or letter (see phone and address information below). Please note that discussions on group message boards are pubic information, and not protected under the privacy policies.
State Fundraising Notices
Although our financial report is always sent free to anyone requesting a copy, certain states require us to advise you that a copy of our financial report is available from them.
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting patients, their families and caregivers, and promoting scientific advances.
Our mailing address is:
Lewy Body Dementia Association
912 Killian Hill Road SW
Lilburn, GA 33047
The information enclosed describes one or more of the LBDA’s activities. Your gift is very much appreciated and tax deductible as a charitable contribution to the fullest extent allowed by law. A copy of LBDA’s latest financial report can be obtained by clicking here. If you are a resident of the following states, you may obtain information directly by contacting:
A copy of the official registration and financial information of LBDA may be obtained from the Division of Consumer Service 1-800-435-7352, toll-free within the state. LBDA’s Florida registration number is CH16255.
Copies of documents and information submitted by LBDA are available for the cost of copies and postage from the Secretary of State, Statehouse, Annapolis, MD 21401 or by calling (410) 974-5534.
The official registration and financial information of LBDA may be obtained from the Mississippi Secretary of State’s office by calling 1-888-236-6167.
Information filed with the Attorney General concerning this charitable solicitation may be obtained from the Attorney General of the State of New Jersey by calling (973) 504-6215.
New York residents may obtain a copy of LBDA’s annual report by writing to the Office of the Attorney General, Department of Law, Charities Bureau, 120 Broadway, New York, NY 10271.
The official registration and financial information of LBDA may be obtained from the Pennsylvania Department of State by calling toll-free, within Pennsylvania, 1-800-732-0999.
A financial statement for the most recent fiscal year is available upon request from the State Division of Consumer Affairs, P.O. Box 1163, Richmond, VA 23209; 1-804-786-1343.
You may obtain additional financial disclosure information by contacting the Secretary of State at 1-800-332-GIVE.
West Virginia residents may obtain a summary of the registration and financial documents from the Secretary of State, State Capital, Charleston, WV 25305
REGISTRATION WITH A STATE AGENCY DOES NOT CONSTITUTE OR IMPLY ENDORSEMENT, APPROVAL OR RECOMMENDATION BY THAT STATE.
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LBDA invites you to submit a personal Lewy body dementia story or photograph for possible inclusion in our Web site, newsletters or other publications. Click here to learn of our policies regarding the submission and use of creative materals for the site.
PLEASE READ THESE TERMS AND CONDITIONS OF USE CAREFULLY BEFORE USING THIS SITE
This page states the Terms and Conditions under which you may use this web site (“Web Site”). By using this site, you signify your assent to these Terms and Conditions. If you do not agree to all of these Terms and Conditions you are advised not to use this site.
LBDA may revise and update these Terms and Conditions at any time. Your continued use of the LBDA web site will mean you accept those changes. These Terms and Conditions are the sole agreement between you and the LBDA regarding use of the Web Site and cannot be modified except in writing and signed by the LBDA, or posted on this Web Site.
Section 1. Disclaimer
The contents of the Web Site, such as text, graphics, images, information obtained from articles written by content contributors, and other material contained on the Web Site (“Material”) are for informational purposes only. The Material is not intended to be a substitute for professional medical advice, diagnosis, or treatment. You should always seek the advice of your physician or other qualified health provider with any questions you have about a medical condition. Never disregard professional medical advice or delay in receiving it because of something you have read on the LBDA Web Site. Additionally, the LBDA does not give legal or financial advice. You should always seek the advice of competent legal counsel and financial advisers for any legal or financial questions you have.
Any listings or links to the web sites of medical, legal or financial professionals on this Web Site are strictly informational only. The LBDA does not recommend or endorse the services of specific professionals or verify their competency. You are responsible for making independent decisions on what professionals to use based on your own criteria and volition.
The LBDA, its agents and others involved in assembling or disseminating information are not responsible for any errors or omissions contained in the Material, or any action resulting from reliance on the Material.
The LBDA does not endorse any specific tests, physicians, products, procedures, opinions, or other information that may be mentioned on the Web Site. Reliance on any information provided by the LBDA, LBDA employees, or others appearing on the Web Site at the invitation of the LBDA, or other visitors to the Web Site is solely at your own risk.
Section 2. Use of Material
The LBDA authorizes you to view and download a single copy of the Material on this Web Site solely for your personal, noncommercial use.
The contents of this Web Site, such as text, logos, graphics, images and other material (“Material”) are protected by copyright under both United States and foreign laws. Unauthorized use of the Material may violate copyright, trademark, and other laws. Commercial use or publication of any Material is strictly prohibited without the express, written authorization of the LBDA. You must retain all copyright and other proprietary notices contained in the original Material on any copy you make of the Material. You may not sell, republish, reproduce, post, broadcast or modify the Material or use the Material in any way for any public or commercial purpose without the express, written authorization of the LBDA. The use of the Material on any other web site or in any networked computer environment for any purpose is prohibited.
If you violate any of these Terms, your permission to use the Material automatically terminates and you must immediately destroy any copies you have made of the Material.
Section 3. Links to Other Web Sites
The Web Site may contain links to third party web sites. These links are provided solely as a convenience to the users of our Web Site and not as an endorsement by the LBDA of the contents of such third-party web sites or endorsements by the owners of a third party web site of the LBDA. The LBDA is not responsible for the content of linked third-party sites and does not make any representations regarding the content or accuracy of materials on such third party web sites. If you decide to access links to third party web sites, you do so at your own risk.
Section 4. Indemnity
You agree to indemnify, hold harmless and defend the LBDA, its officers, directors, agents and employees, from and against any third party claims, actions or demands including without limitation reasonable legal and accounting fees and costs alleging or resulting from your use of the Material on the Web Site, or your breach of these Terms and Conditions. The LBDA will notify you promptly of any such claim, suit, or proceeding and shall assist you, at your expense, in defending any such claim, suit or proceeding.
Section 5. User Submissions
a) If you submit an article or other form of information, including postings to a listserv, message board, or web log, (“Submission”) on this Web Site you do so with the understanding that the Submission is not confidential. By posting Submissions on the Web Site you automatically grant the LBDA a royalty-free, perpetual, irrevocable non-exclusive license to use, reproduce, modify, publish, edit, translate, distribute, perform, and display the Submission alone or as part of other works in any form, media, technology whether now known or later developed, and to sublicense such rights to sublicensees.
b) When you submit information, your are responsible for the consequences of its posting. When posting an article or other form of information you agree not to do the following things:
• Post material that is copyrighted, unless you are the copyright owner or have the permission of the copyright owner;
• Post material that reveals trade secrets, unless you own them or have the permission of the owner;
• Post materials that infringes on any intellectual property rights of others or on the privacy or publicity rights of others;
• Post material that is obscene, defamatory, threatening, harassing, abusive, hateful, or embarrassing to another user of the Web Site or any person or entity;
• Post a sexually explicit image;
• Post advertisements or solicitations of business;
• Post chain letters or pyramid schemes;
• Impersonate another person, or
• Take any action that might interfere with the functionality of this Web Site or the materials contained on the Web Site.
c) LBDA does not screen Submissions of material in advance and is not responsible for screening or monitoring any Material posted by Web Site users. If it comes to the attention of LBDA that there may be Material that does not conform to these Terms and Conditions, LBDA may investigate the situation and determine in good faith, and in its sole discretion, whether to remove or request removal of the Submission. LBDA has no liability or responsibility to Web Site users for performance or nonperformance of such activities. LBDA reserves the right to expel users and prevent their further access to the SITE for violating these Terms and Conditions or the law and the right to remove Material that is abusive, illegal, or disruptive.
Section 6. LBDA’s Liability
Although the LBDA has made every effort to assure that the contents of this Web Site are correct and complete, the content may contain inaccuracies or typographical errors. Company makes no representations about the accuracy, reliability, completeness, or timeliness of the Material posted by users of the Web Site or about the results to be obtained from using the Web Site and the Material. The LBDA does not endorse the opinions expressed in any Material. The use of the Web Site and the Material is at your own risk. Changes are periodically made to the Web Site and may be made at any time, however, are not obligated to update this Web Site and the contents may be out of date.
THE WEB SITE AND MATERIAL ARE PROVIDED ON AN ‘AS IS’ BASIS WITHOUT ANY WARRANTIES OF ANY KIND. THE LBDA AND ITS SUPPLIERS, TO THE FULLEST EXTENT PERMITTED BY LAW, DISCLAIM ALL WARRANTIES, INCLUDING THE WARRANTY OF MERCHANTABILITY, NON-INFRINGEMENT OF THIRD PARTIES RIGHTS, AND THE WARRANTY OF FITNESS FOR PARTICULAR PURPOSE. THE LBDA AND ITS SUPPLIERS MAKE NO WARRANTIES ABOUT THE ACCURACY, RELIABILITY, COMPLETENESS OR TIMELINESS OF THE MATERIAL, SERVICES, SOFTWARE TEXT, GRAPHICS, AND LINKS.
IN NO EVENT SHALL THE LBDA, ITS SUPPLIERS, OR ANY THIRD PARTIES MENTIONED BY THIS BE LIABLE FOR ANY DAMAGES WHATSOEVER (INCLUDING WITHOUT LIMITATION, INCIDENTIAL AND CONSEQUENTIAL DAMAGES, LOST PROFITS, OR DAMAGES RESULTING FROM THE USE OR INABILITY TO USE THE WEB SITE AND THE MATERIAL, WHETHER BASED ON WARRANTY, CONTRACT, TORT OR ANY OTHER LEGAL THEORY EVEN IF THE LBDA IS ADVISED OF THE POSSIBILITY OF SUCH DAMAGES.
Section 7. Trademarks
Using any of the trademarks or logos of the LBDA without prior written consent is strictly prohibited
Section 8. Jurisdiction
This Web Site and its contents are designed to comply with the laws and regulations of the United States of America and the State of Georgia. Any legal action or proceeding related to this Web Site shall be brought exclusively in a federal or state court of competent jurisdiction sitting in the State of Georgia.