The Cruellest Dementia
The Cruellest Dementia. I can't remember the point we realized that something was amiss with Mum; I just recall it seemed to happen quickly. She was eventually diagnosed with […]
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LBD and Parkinson’s
LBD and Parkinson's My husband, Bob, was diagnosed by a neurologist at the VA with LBD and Parkinson's in October of 2015. Major symptoms developed last March/April with hallucinations, delusions, […]
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Elevator Ride
Elevator Ride Every Sunday I take my mother, who is 65 and has LBD, to Sunday services. I have 3 children, ages 7-12, and between getting them ready and my […]
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Blood isn’t thicker than water
Receiving a diagnosis of EOALZ, around age 46- wasn't a surprise- because I could tell I was having difficulty with memory, balance, and I was hearing & seeing things. The […]
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Welcome to Lewyville
Travel is one of life’s greatest pleasures. Getting into a car or boarding a plane and being whisked away to another city, state, or country to explore its wonders always […]
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LBD is Not My Daddy
LBD is Not My Daddy My mother and father separated when I was 2. Not long after my father remarried and had two other children. Although we didn't see each […]
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I am still here
FEATURED, Q&A I’m Still Here: What It’s Like To Live With Dementia 5 DAYS AGO by JOSH ANDREW In a brave and important interview, Kim Ovard opens up about her […]
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Close Caring
Today, I am blessed by having a Visiting Angel named Shannon who was also an alcoholic, although I am still working on her to quit the cigarettes. Since my own […]
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My Grandpa, My Hero
Our sixteen year old grandson wrote this for his speech class recently. I thought you might want to share it with other readers. Thanks, Grandma Long Who do you think […]
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Mom’s Poem to Dad
My father was diagnosed with Lewy Body Dementia in July 2016 and passed away at 71 years old on October 2, 2016. My mother wrote this poem about him: I Didn't […]
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My Hero – My Grandpa
Who do you think of when you hear the word hero? Maybe famous athletes, authors, or even politicians. My hero is a little more ordinary, my grandpa Long. My […]
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The Crux of the Matter
When my wife and I first received the diagnosis of dementia with Lewy bodies, it was not as much of a shock; nor was it a surprise. After 18 months […]
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Lewy Body Dementia: One Day at a Time
Wednesday night I took the plunge and headed into the uncharted waters of a Lewy Body Dementia support group. I was thankful to have my good friend Leslie by my […]
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Gone Too Soon
My husband of thirty-three years passed away last October of Lewy Body Dementia. It apparently began to reveal itself with sleep disturbances going back about eight years ago. In the […]
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Ormolu’s Story: A Story of Lewy Body Dementia
Ormolu was born January 16, 1935. She married Robert Napper on September 12, 1957 and were married for 59 years. They had a daughter and three sons. During her […]
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Cats, Babies and Other Dimensions
As my mom lay dying in her hospice room, a little kitty curled up at her feet, leaving a warm spot at the bottom of the bed. I had never […]
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Veteran With PTSD and LBD Denied Admittance 32 Times
February 16, 2016 Patient Name & Veteran: Ronald Lee Davis To whom it may concern, We recently had a horrifying experience trying to obtain medical care for my husband, Ronald […]
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Jean’s Story
Now, looking back in time, a seemingly simple little expression from Norm, our son-in-law, might have been the first signpost we encountered in our long and difficult roller coaster ride […]
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Our Horrible Journey
It was a terrible, horrific, awful time. I don’t know how we lived through it and I NEVER want to go through anything like it again. God had to have […]
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In Memory of Ruth
After six frustrating months and four doctors we finally found a doctor at Penn Medicine in Philadelphia, who we were told was one of the leading doctors in dementia. I […]
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