A Visit With Dad

My father was a victim of LBD. I wrote this after a visit with him. A VISIT WITH DAD I’ve come to visit dad. He sits there in his chair. […]
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This is Lewy… my mom’s story

My mother, Alice, was originally diagnosed with Alzheimer’s around 2001, but had adverse reactions to the medication prescribed by her doctor. After several setbacks that required additional care in order […]
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Celebrating Love

Recently our church family celebrated Valentine’s Day with a lovely dinner out in the elegant surroundings of a charming Italian restaurant. We have enjoyed this dinner with friends, old and […]
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Lewy, Mom, and Me

When Lewy Body Dementia entered my home, the world as I knew it began to shift and I found myself in a constant state of confusion. My sweet mother, who […]
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Mother’s Poem

Watched you fall a part each night Cried because I needed you back The voices would not leave you alone Body shook as disease slowly attacked Lewy lean weighted down […]
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Our Love

Frank, my husband of 27 years, and I have endured LBD for eight years. It begins slowly stealing small pieces of memory at a time until one day you realize […]
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My Mom, LBD and Tamiflu.

My Mom is 93 years old, was diagnosed with LBD 3 1/2 years ago by her geriatric physician.  On 3/18/17, the nursing home where my Mom resides started giving Tamiflu […]
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Lewy Body Dementia: The Artist Within

Sometimes the most fascinating people in the world to listen to are the ones who struggle to speak at all, whose body is crumbling, cheating itself of its once natural […]
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Early Onset LBD

My husband, Ken, was diagnosed with Lewy body dementia four years ago. He was highly educated and 60 years old. We had been together for over 10 years, having met […]
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LBD

LBD is hell. My mother, Joyce, was misdiagnosed with Parkinson’s disease in 2009. Several months later she was admitted to a mental hospital. She was accused of faking her symptoms, […]
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