I am still here

FEATURED, Q&A I’m Still Here: What It’s Like To Live With Dementia 5 DAYS AGO by JOSH ANDREW In a brave and important interview, Kim Ovard opens up about her […]
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Close Caring

Today, I am blessed by having a Visiting Angel named Shannon who was also an alcoholic, although I am still working on her to quit the cigarettes. Since my own […]
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My Grandpa, My Hero

Our sixteen year old grandson wrote this for his speech class recently.  I thought you might want to share it with other readers.  Thanks, Grandma Long   Who do you think […]
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Mom’s Poem to Dad

My father was diagnosed with Lewy Body Dementia in July 2016 and passed away at 71 years old on October 2, 2016. My mother wrote this poem about him:   I Didn't […]
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My Hero – My Grandpa

  Who do you think of when you hear the word hero? Maybe famous athletes, authors, or even politicians. My hero is a little more ordinary, my grandpa Long. My […]
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The Crux of the Matter

When my wife and I first received the diagnosis of dementia with Lewy bodies, it was not as much of a shock; nor was it a surprise. After 18 months […]
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Lewy Body Dementia: One Day at a Time

Wednesday night I took the plunge and headed into the uncharted waters of a Lewy Body Dementia support group. I was thankful to have my good friend Leslie by my […]
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Gone Too Soon

My husband of thirty-three years passed away last October of Lewy Body Dementia. It apparently began to reveal itself with sleep disturbances going back about eight years ago.  In the […]
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Ormolu’s Story: A Story of Lewy Body Dementia

  Ormolu was born January 16, 1935. She married Robert Napper on September 12, 1957 and were married for 59 years. They had a daughter and three sons. During her […]
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Forever Changed

August 2014, will mark one year that our lives changed forever. Little did I know that my dad was about to be diagnosed with the evilest disease I’ve ever witnessed. […]
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My hubby and Lewy Bodies

My hubby and Lewy Body Mike was told he had FTD about 7 years ago along with AD, however, we went to a specialist 2 years ago that said he […]
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Dad’s Dementia Journey

It’s been years since my father passed away but I still remember the day I saw the words Lewy body. A few weeks ago I received an email from the […]
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The Trick Disease

This may be as close as I get to writing that book on caregiving I always said I would do.  It was only after my Mother passed away that I […]
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Love Remembers

She lost her husband in 2009. Things started to change shortly after. She lost her job, she wasn’t doing well in her new school, and she kinda just started acting […]
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All Too Familiar

This terrible disease was all too familiar to my family and I.  Almost two years ago, my mother, who was only newly 52 at the time, was diagnosed with LBD. […]
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Cats, Babies and Other Dimensions

As my mom lay dying in her hospice room, a little kitty curled up at her feet, leaving a warm spot at the bottom of the bed.  I had never […]
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Veteran With PTSD and LBD Denied Admittance 32 Times

February 16, 2016 Patient Name & Veteran: Ronald Lee Davis To whom it may concern, We recently had a horrifying experience trying to obtain medical care for my husband, Ronald […]
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Jean’s Story

Now, looking back in time, a seemingly simple little expression from Norm, our son-in-law, might have been the first signpost we encountered in our long and difficult roller coaster ride […]
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Our Horrible Journey

It was a terrible, horrific, awful time.  I don’t know how we lived through it and I NEVER want to go through anything like it again.  God had to have […]
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In Memory of Ruth

After six frustrating months and four doctors we finally found a doctor at Penn Medicine in Philadelphia, who we were told was one of the leading doctors in dementia.  I […]
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