Medical Assistant

I was best friends with my grandma. As a child, I spent most of my time with her since she watched me after school until my parents got out of […]
Read More

New LBD BLOG

Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]
Read More

Lewy Body Dementie

Mijn partner heeft de diagnose LBD gehad enkele maanden geleden en dit n.a.v. het volgende voortraject. Hij heeft al sinds 1994 een slaap-apneu syndroom met , zoals we pas sinds […]
Read More

Our battle with Lewy

I am going to tell our story of our fight with LBD … Let me start at the beginning. Daddy had corneal transplants. We would joke back and forth (daddy […]
Read More

The Trials and Tribulations of LBD

Vickie met her husband, Paul, the first day of college in 1972. A woman was playing the piano in the campus cafeteria. Vickie caught Paul’s eye and he approached her […]
Read More

10 things I wish I had known sooner

Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]
Read More

LBD Caregiver vs. Advocate, Which are You?

Imagine, you are in a plane at 10,000 feet riding comfortably, without a care. Then, the pilot dons a parachute and jumps out. Now, what do you do? Believe it […]
Read More

LBD Takes on Ironman

Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]
Read More

Registered Nurse and caregiver for 48 residents and families.

I have care for residents and their families for the last 18 years. I am the one who follows the resident to the Emergency Room. Through the years I have […]
Read More

A Visit With Dad

My father was a victim of LBD. I wrote this after a visit with him. A VISIT WITH DAD I’ve come to visit dad. He sits there in his chair. […]
Read More