Miss

I dont know where to start? Im 34 my names donna and i look after my mum joan who has just turned 73, she has mixed dementia lewy bodies and […]
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James Wood

Hello, My dad has been living with Lewy Body Dementia for over 10 years now. At this point, he can no longer walk, bathe, or feed himself without assistance. Once […]
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A Year Ago: When Was That?

A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]
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Medical Assistant

I was best friends with my grandma. As a child, I spent most of my time with her since she watched me after school until my parents got out of […]
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New LBD BLOG

Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]
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Lewy Body Dementie

Mijn partner heeft de diagnose LBD gehad enkele maanden geleden en dit n.a.v. het volgende voortraject. Hij heeft al sinds 1994 een slaap-apneu syndroom met , zoals we pas sinds […]
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Our battle with Lewy

I am going to tell our story of our fight with LBD … Let me start at the beginning. Daddy had corneal transplants. We would joke back and forth (daddy […]
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The Trials and Tribulations of LBD

Vickie met her husband, Paul, the first day of college in 1972. A woman was playing the piano in the campus cafeteria. Vickie caught Paul’s eye and he approached her […]
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10 things I wish I had known sooner

Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]
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LBD Caregiver vs. Advocate, Which are You?

Imagine, you are in a plane at 10,000 feet riding comfortably, without a care. Then, the pilot dons a parachute and jumps out. Now, what do you do? Believe it […]
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