The Wedding Day that Almost Wasn’t
I got a call from my mom one month before my wedding, “Your dad fell and he can’t walk.” She reluctantly had to put him in a nursing home for […]
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daughter with question
I have a 79 year old mother who has been going through visual hallucinations for 2.5 years, and we do not know what to do. I would like to share […]
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My Beautiful Mom
I lost my mom and best friend on July 21,2014. She had struggled with Lewy Body for 5 horrible years. At first they said Parkinson’s, then Alzheimer’s, then dementia,who knows […]
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What LBD Can’t Do!
Calvin and I would have celebrated our golden anniversary this past December third. In 1964. we were waiting for my eighteenth birthday. I was 18 and he was 20 when […]
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The End of the Journey
My dear husband has been gone since December 8th. I have struggled to write this. Started and stopped. Wondered exactly what to say….it is profoundly difficult for me to put […]
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It looks pretty, too.
I awoke in the middle of the night to my Mom talking loudly. When I arrived at my Mom’s bedside, she smiled sweetly at me and whispered, “Hi.” She was […]
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A Noble Soul
My best friend and husband John Greges died on September 3rd 2012. He was 73 and had suffered from many ailments and then for a lot of years Lewy Body […]
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My experience with LBD
A terrible disease that rips away a persons dignity and independence. My father passed away on 7/15/14 from end stage lung cancer, but was in the hospital in the week […]
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Today
My Dad was diagnosed with LBD in 2013. I had suspected he had dementia many years prior as his reasoning abilities seemed to diminish and he grew increasingly paranoid and […]
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My father and his LBD journey
My father passed away May 29th, 2014 from LBD. He was diagnosed approximately 5 to 6 years prior. But he showed symptoms for 4 to 5 years before that. my […]
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It is well with my soul
On a sunny day, five years ago, Jude crawled around with Buddy, on the kitchen floor. As Jude woofed and crawled while Buddy skidded on the vinyl around and around […]
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LBD and my experience
My father passed away May 29th, 2014. He was diagnosed with LBD after a incorrect diagnosis of Alzheimer’s. Form the onset of symptoms to his death was about 12 to […]
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Gone a Year, Not Forgotten
It’s a year ago next week my dear husband Ben passed away after four years with LBD. I knew something was terribly wrong when I found him at the back […]
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My husband is at rest now
I met my husband about 10 years ago. We got married in 2006 and then in 2009 we found out he had Lewy body… We just lost him on Aug […]
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Trying to Remember Our Lives Before Lewy Body
Sept. marked one year since my husband of 26 years Mike passed away from Lewy Body Dementia. The previous three years were the hardest of my life. Mike’s symptoms really […]
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The Journey
To all those who stories I have read today my heart goes out to you and your love one. Even twenty months later it is still difficult to review our […]
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A Fast Onset LBD Journey: He Is Still In There
Dad started working when he was 10. You see, many little boys. born in the Great Depression and growing up though the WWII years started looking for their first pennies […]
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Maxine – an acrostic poem
Maxine L osing you to this disease is beyond painful and paralyzing E ach day wondering what will be… W aking up with angst and longing to have real conversation […]
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He Always Knows
Funny, smart, caring not a mean bone in his body. We are a blended marriage; now married for 17 years. John is very generous and I, being independent felt a […]
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