Important note regarding LBD Support Groups during the COVID-19 crisis: Many of our groups meet in senior facilities/healthcare locations and have cancelled their meetings. Most are cancelling in-person meetings and may be meeting via phone/video conferencing. Contact the Support Group Facilitator if you have any questions/concerns about a particular group at this time. In addition, Support is just a click away when you connect with others in an online community (Virtual Support Groups tab).
Seeking support? Connect with individuals, families and caregivers who are seeking support during life’s challenging times. With support groups in over 30 states, connecting with other caregiver provides valuable and trusted resources and information for LBD families. We provide free, confidential support in a group setting to anyone affected by LBD—whether you are an LBD caregiver or are a loved one, friend, or professional caregiver of someone diagnosed.
To find a support group in your local area, select your state’s two letter abbreviation from the drop down menu and click apply. (If no groups are listed, consider launching one in your community. Click here to become a volunteer.)
Facebook Groups: LBDA provides three Facebook groups to support the LBD community.
LBDA Care Partners– a place to provide support and guidance as well as share information and resources. Membership is limited to care partners of those living with Lewy body dementia.
Living with Lewy – This group is intended only for those living with LBD to provide information and support. Membership is limited to those with Lewy body dementias.
Living Together with Lewy – This group is intended only for those in the early stages of LBD and their care partners.
Volunteer Led Virtual Support Groups: Many trained volunteers run virtual support groups for those who are unable to make in-person meetings.
LBD Caring Spouses – A support group for people whose husband or wife is living with one of the Lewy body disorders (LBD): dementia with Lewy bodies (DLB)) or Parkinson's disease dementia (PDD).