Wonder Twins Raising Awareness

Abigail and Liliana are ten-year-old twins who have put their incredible talents together to raise awareness of Lewy body dementia! They were inspired to help the mission of LBDA in […]
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LBD Takes on Ironman

Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]
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New LBD BLOG

Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]
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A Year Ago: When Was That?

A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]
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Lewy Body Dementie

Mijn partner heeft de diagnose LBD gehad enkele maanden geleden en dit n.a.v. het volgende voortraject. Hij heeft al sinds 1994 een slaap-apneu syndroom met , zoals we pas sinds […]
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Marvis, Lewy and Me

Here is my blog I started the first of the year. It has been a tough journey. I hope my stories can help you, inspire you and give you understanding […]
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James Wood

Hello, My dad has been living with Lewy Body Dementia for over 10 years now. At this point, he can no longer walk, bathe, or feed himself without assistance. Once […]
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Brother with special needs and LBD

My brother is now 68. When he was 3, he hit his head on the coffee table and due to lack of oxygen, caused trauma to his brain and became […]
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10 things I wish I had known sooner

Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]
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Down the rabbit hole

My mom was my best friend. I was the only girl in a family of six kids, so we were very close. She would come out to visit me from […]
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