Coping with Pain Through Writing

The Father Forget not that the Earth likes to feel your bare feet and the winds long to play with your hair. He is standing alone in the middle of […]
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My Dad

My Dad Susie Flower March 15, 2018 My dad is 75 years old and has been having active dreams and talking in his sleep for about 12 years now. He […]
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This is Lewy… my mom’s story

My mother, Alice, was originally diagnosed with Alzheimer’s around 2001, but had adverse reactions to the medication prescribed by her doctor. After several setbacks that required additional care in order […]
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Registered Nurse and caregiver for 48 residents and families.

I have care for residents and their families for the last 18 years. I am the one who follows the resident to the Emergency Room. Through the years I have […]
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From Dancing to Disaster

My mom probably has Lewy Body Dementia. She was diagnosed with Parkinson’s Disease but has symptoms more in line with Lewy Body. My mom often shakes when getting up to […]
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Miss

Attatched is a poem I wrote for Mum who died from dementia with Lewy bodies.
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A Visit With Dad

My father was a victim of LBD. I wrote this after a visit with him. A VISIT WITH DAD I’ve come to visit dad. He sits there in his chair. […]
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The wife

I am going through this now with my husband. I kind of expected withdrawal and memory loss. But I didn’t expect so many roller coaster rides. The ups and down […]
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Celebrating Love

Recently our church family celebrated Valentine’s Day with a lovely dinner out in the elegant surroundings of a charming Italian restaurant. We have enjoyed this dinner with friends, old and […]
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3 things I learned about me and my Lewy body dementia on my European vacation

My recent ‘bucket list’ trip to Europe, a quest planned by my three daughters after my diagnosis late last year of Lewy body dementia, brought with it three revelations about […]
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What About Us

I see this submit a caregiver story and I look for a place to put my story. I am not a caregiver. I have Lewy, 68 years old, former big […]
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Our Family’s Journey with LBD

I can't remember the point we realized that something was amiss with Mum; I just recall it seemed to happen quickly. She was eventually diagnosed with dementia with Lewy bodies […]
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Mother’s Poem

Watched you fall a part each night Cried because I needed you back The voices would not leave you alone Body shook as disease slowly attacked Lewy lean weighted down […]
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My Dad

Hello, My 81 years old (and 11 months) dad lost his battle with LBD on 2/28/17. We all know what a horrific disease it is and what it can do. […]
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Colleen’s Story

I am a single 55 year young lady who loves life, and this is my story: I was diagnosed with LBD September 2014, after being diagnosed with MCI (mild cognitive […]
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LBD Was His Kryptonite

Death does not sound a trumpet. – African proverb There were no trumpets, or any heralding anything. Just quiet, and then he was gone. He slept all day yesterday, occasionally […]
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Father and Son

Hi my name is Ron Hansen and I am 53 and married to Lynda, dad to Katharine (Kate) and Sarah and son to Gary and Beverly Hansen. As a native […]
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Brenda’s Story

             My mother is the most amazing mother anyone could ask for. One characteristic that really stood out about my mom was her artistic side. She could draw anything that […]
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Swanny’s life story

Evelyn Swanhild Halvorsen was born in Brooklyn, NY in 1936. “Made in America with 100% Norwegian parts” is what she would say. Her parents were Norwegian immigrants…her father a ship builder, […]
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Aging with Dignity with LBD

In my case, I intervened in my mother, Linda's life 14 years ago, because "something was just not right." She stopped eating right, her house was a mess, she was […]
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