Biking Across the United States with LBD

My partner John has been diagnosed with LBD for two and a half years, and before that with mild cognitive impairment (MCI) for almost three years. In January of 2016, […]
Read More

Blame it on Lewy?

I wrote this story for my father and for all those who are sadly misdiagnosed. I lost my father to something horrible that changed him from a strong, brilliant, handsome […]
Read More

Blame it on Lewy?

Strong, brilliant and handsome is how I would have described my father. As a young man, he was a competition weight lifter, winning numerous awards and titles. He became a […]
Read More

Blood isn’t thicker than water

Receiving a diagnosis of EOALZ, around age 46- wasn't a surprise- because I could tell I was having difficulty with memory, balance, and I was hearing & seeing things. The […]
Read More

Brenda’s Story

             My mother is the most amazing mother anyone could ask for. One characteristic that really stood out about my mom was her artistic side. She could draw anything that […]
Read More

Brother with special needs and LBD

My brother is now 68. When he was 3, he hit his head on the coffee table and due to lack of oxygen, caused trauma to his brain and became […]
Read More

Caregiver

My husband, George, passed away on Nov. 22, 2013 from LBD. He had been diagnosed with Parkinson’s Disease in Nov., 2005. From the beginning he had experienced dreams in which […]
Read More

Caregiver sister

My story is about my brother-in-law and he was first diagnosed with Parkinson’s. In December of 2017, an intern gave him an antihistamine and steroid shot and after that he […]
Read More

Caregiving for My Wife

My wife Maria recently passed away on January 8th, 2017. It began in 2007 after I noticed she was having trouble walking. She had suffered a stroke in May 2004 but […]
Read More

Cats, Babies and Other Dimensions

As my mom lay dying in her hospice room, a little kitty curled up at her feet, leaving a warm spot at the bottom of the bed.  I had never […]
Read More