A Year Ago: When Was That?

A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]
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10 things I wish I had known sooner

Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]
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Brother with special needs and LBD

My brother is now 68. When he was 3, he hit his head on the coffee table and due to lack of oxygen, caused trauma to his brain and became […]
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My Mother’s Story

My kind and loving mother was diagnosed with Alzheimer’s when it became obvious that her memory was impaired. She was put on drugs to treat Alzheimer’s, which did nothing to […]
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Ms

My Mom was taken so quickly and my Dad committed suicide 7 months before she passed away on his birthday. She was in long term care and we never knew […]
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Lewy Body Dementie

Mijn partner heeft de diagnose LBD gehad enkele maanden geleden en dit n.a.v. het volgende voortraject. Hij heeft al sinds 1994 een slaap-apneu syndroom met , zoals we pas sinds […]
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LBD Takes on Ironman

Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]
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LBD Caregiver vs. Advocate, Which are You?

Imagine, you are in a plane at 10,000 feet riding comfortably, without a care. Then, the pilot dons a parachute and jumps out. Now, what do you do? Believe it […]
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New LBD BLOG

Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]
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Miss

I dont know where to start? Im 34 my names donna and i look after my mum joan who has just turned 73, she has mixed dementia lewy bodies and […]
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