Down the rabbit hole
My mom was my best friend. I was the only girl in a family of six kids, so we were very close. She would come out to visit me from […]
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LBD Caregiver vs. Advocate, Which are You?
Imagine, you are in a plane at 10,000 feet riding comfortably, without a care. Then, the pilot dons a parachute and jumps out. Now, what do you do? Believe it […]
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James Wood
Hello, My dad has been living with Lewy Body Dementia for over 10 years now. At this point, he can no longer walk, bathe, or feed himself without assistance. Once […]
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LBD Takes on Ironman
Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]
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A Year Ago: When Was That?
A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]
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10 things I wish I had known sooner
Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]
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Medical Assistant
I was best friends with my grandma. As a child, I spent most of my time with her since she watched me after school until my parents got out of […]
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Miss
I dont know where to start? Im 34 my names donna and i look after my mum joan who has just turned 73, she has mixed dementia lewy bodies and […]
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Our battle with Lewy
I am going to tell our story of our fight with LBD … Let me start at the beginning. Daddy had corneal transplants. We would joke back and forth (daddy […]
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Miss
I dont know where to start? Im 34 my names donna and i look after my mum joan who has just turned 73, she has mixed dementia lewy bodies and […]
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The Trials and Tribulations of LBD
Vickie met her husband, Paul, the first day of college in 1972. A woman was playing the piano in the campus cafeteria. Vickie caught Paul’s eye and he approached her […]
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2018 Art Show and LBDA Fundraiser, in the history books!
Recently my family hosted an art show/fundraiser with my LBD husband’s oil paintings, prints, and notecards; all on display, and for sale at a local gallery. This was our second […]
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My Mother’s Story
My kind and loving mother was diagnosed with Alzheimer’s when it became obvious that her memory was impaired. She was put on drugs to treat Alzheimer’s, which did nothing to […]
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New LBD BLOG
Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]
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Mrs.
Happy birthday, Daddy. When I look at this photo, I see my own son – the wondrous and precocious child who makes everyone laugh with anecdotes and proverbial dad jokes. […]
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Caregiver sister
My story is about my brother-in-law and he was first diagnosed with Parkinson’s. In December of 2017, an intern gave him an antihistamine and steroid shot and after that he […]
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The Builder
The Builder I was the one with pen in hand, building imaginary worlds with words. But my dad held the tools that built my life. He constructed the foundation for […]
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Coping with Pain Through Writing
The Father Forget not that the Earth likes to feel your bare feet and the winds long to play with your hair. He is standing alone in the middle of […]
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