LBD Takes on Ironman

Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]
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Managing LBD Care – By a Family Caregiver

I wrote “Aging with Dignity” 1 year 2 months ago, based on my experience as a Family Caregiver for Linda H, who lives on her own with LBD. In the […]
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Lewy Body Dementie

Mijn partner heeft de diagnose LBD gehad enkele maanden geleden en dit n.a.v. het volgende voortraject. Hij heeft al sinds 1994 een slaap-apneu syndroom met , zoals we pas sinds […]
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Marvis, Lewy and Me

Here is my blog I started the first of the year. It has been a tough journey. I hope my stories can help you, inspire you and give you understanding […]
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A Year Ago: When Was That?

A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]
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Ms

My Mom was taken so quickly and my Dad committed suicide 7 months before she passed away on his birthday. She was in long term care and we never knew […]
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New LBD BLOG

Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]
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Down the rabbit hole

My mom was my best friend. I was the only girl in a family of six kids, so we were very close. She would come out to visit me from […]
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Brother with special needs and LBD

My brother is now 68. When he was 3, he hit his head on the coffee table and due to lack of oxygen, caused trauma to his brain and became […]
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10 things I wish I had known sooner

Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]
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My Twin

I have not lived around my twin sister for a few years. She lived with me in 2014 after her divorce. She had a back injury and was heavily medicated […]
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Mrs.

Happy birthday, Daddy. When I look at this photo, I see my own son – the wondrous and precocious child who makes everyone laugh with anecdotes and proverbial dad jokes. […]
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This is Lewy… my mom’s story

My mother, Alice, was originally diagnosed with Alzheimer’s around 2001, but had adverse reactions to the medication prescribed by her doctor. After several setbacks that required additional care in order […]
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Goodbye to My Steam Man

Lewy Body Dementia (LBD) takes prisoners, and it does not discriminate. When LBD targets someone, there isn't a cure and no escape—it’s a one-way journey with a guaranteed rough ride […]
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Miss

Attatched is a poem I wrote for Mum who died from dementia with Lewy bodies.
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Coping with Pain Through Writing

The Father Forget not that the Earth likes to feel your bare feet and the winds long to play with your hair. He is standing alone in the middle of […]
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The wife

I am going through this now with my husband. I kind of expected withdrawal and memory loss. But I didn’t expect so many roller coaster rides. The ups and down […]
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Caregiver sister

My story is about my brother-in-law and he was first diagnosed with Parkinson’s. In December of 2017, an intern gave him an antihistamine and steroid shot and after that he […]
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The Builder

The Builder I was the one with pen in hand, building imaginary worlds with words. But my dad held the tools that built my life. He constructed the foundation for […]
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