A Mother Managing Lewy

Michelle Pagans, a 53-year-old mother to a teen daughter and 27-year-old son, is taking on motherhood and Lewy body dementia (LBD) at the same time. In 2018, she started experiencing […]
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A Mother’s Day Note

Dear Mom,      I write this as my first year at Boston University nears the end. It was an accomplishment made possible through your support, understanding during my uncertainty, […]
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A New Mission In Life

Don Kent is a licensed attorney with a brilliant career. He will be retiring by the end of 2017 due to his recent diagnosis of Lewy body dementia (LBD). His […]
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A Noble Soul

My best friend and husband John Greges died on September 3rd 2012. He was 73 and had suffered from many ailments and then for a lot of years Lewy Body […]
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A Poem

My partner was diagnosed with Lewy Body this year(2011) in April. The rapid decline in his health and abilities have changed my life. Here is a short poem I wrote […]
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A Visit With Dad

My father was a victim of LBD. I wrote this after a visit with him. A VISIT WITH DAD I’ve come to visit dad. He sits there in his chair. […]
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A Year Ago: When Was That?

A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]
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Aging with Dignity with LBD

In my case, I intervened in my mother, Linda's life 14 years ago, because "something was just not right." She stopped eating right, her house was a mess, she was […]
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All Too Familiar

This terrible disease was all too familiar to my family and I.  Almost two years ago, my mother, who was only newly 52 at the time, was diagnosed with LBD. […]
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An epiphany

We just returned from the Cleveland Clinic. My husband’s meds weren’t changed, which is a good thing. Anytime they don’t need to increase anything, I always figure that’s good. While […]
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