Stories Archive - Page 2 of 12 - Lewy Body Dementia Association

The Independence of Deborah

Lewy body dementia (LBD) does not pick and choose who it will affect. LBD does not care about status, or what kind of support you may or may not have. […]

Wonder Twins Raising Awareness

Abigail and Liliana are ten-year-old twins who have put their incredible talents together to raise awareness of Lewy body dementia! They were inspired to help the mission of LBDA in […]

Lewy Bodies – Our Story

We first noticed something was not quite right when my Dad turned 75. He had continually worked part time in a delivery job but had been forced to give it […]

Helping my LBD Mom Enjoy her new Norm

Linda H., at her stage of LBD, has moved from nearly full time home care to full time nursing home care. We hadn’t realize that she had reached a stage […]

Don’t Assume

My dad was originally diagnosed with Alzheimers 4 years ago, by a neurologist recommended to us by a friend. The Dr patted my mom on the arm and said “There’s […]

30 Minutes of Wonderful

I met my husband when I was 47. He was a 59 year old widower. He asked me out 3 times over 8 months before I accepted, and I only […]

Love Binds

Pat and Ron Potter-Efron's story began over 50 years ago at Mcalester College. They were both Merit scholars and they originally met during a photoshoot for scholar winners. Though it […]

Lewy Body Dementia Professional Interview

For Lewy Body Dementia Awareness Month 2019, LBDA staff interviewed Pamela Corsentino, Director of Support Services at Lewy Body Dementia Association, for insights into her role as an LBD professional. […]

Pamela Corsentino

The Man in the Mirror

My dad was a great father, husband, Papa, funny, loving, personable, smart, jack of all trades, with the most beautiful blue eyes that friends and family still talk about. Dad […]

A Little Pinch Goes a Long Way… to Advancing LBD Research

Being diagnosed with LBD “hit him like a ton of bricks,” said Bob Rodgers, 71 of New Jersey. He’d already learned a little bit about LBD after a neurologist said […]

My Dad

September 2018 my Dad ended up in the hospital with fluid on his heart. After suffering 3 heartattacks during his life time and a triple bypass the year before. This […]

Love is Greater Than Lewy

When you make a commitment to someone, you never envision hurdles or heartbreak along the way. This was the case with the Fowlers. Kathy Fowler is a full-time caregiver to […]

Art Show #3, and Art’s will

As I write this we are four days away from our 3rd Annual Art Lee Art Show and Fundraiser! I can’t believe it! We are looking forward to this weekend […]

Widower/former LBD caregiver

My wife, Balinda, died six months ago. She was originally diagnosed as having LBD with Parkinsonisms in January 2012. She was diagnosed by a neurologist at Emory who she was […]

James Wood

Hello, My dad has been living with Lewy Body Dementia for over 10 years now. At this point, he can no longer walk, bathe, or feed himself without assistance. Once […]

LBD Takes on Ironman

Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]

Down the rabbit hole

My mom was my best friend. I was the only girl in a family of six kids, so we were very close. She would come out to visit me from […]

Marvis, Lewy and Me

Here is my blog I started the first of the year. It has been a tough journey. I hope my stories can help you, inspire you and give you understanding […]