Art Show #3, and Art’s will

As I write this we are four days away from our 3rd Annual Art Lee Art Show and Fundraiser! I can’t believe it! We are looking forward to this weekend […]
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Widower/former LBD caregiver

My wife, Balinda, died six months ago. She was originally diagnosed as having LBD with Parkinsonisms in January 2012. She was diagnosed by a neurologist at Emory who she was […]
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Ashik vs Sorna

Ashik vs Sorna
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Lewy Bodies – Our Story

We first noticed something was not quite right when my Dad turned 75. He had continually worked part time in a delivery job but had been forced to give it […]
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A Little Pinch Goes a Long Way… to Advancing LBD Research

Being diagnosed with LBD “hit him like a ton of bricks,” said Bob Rodgers, 71 of New Jersey. He’d already learned a little bit about LBD after a neurologist said […]
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Lewy Body Dementia Professional Interview

For Lewy Body Dementia Awareness Month 2019, LBDA staff interviewed Pamela Corsentino, Director of Support Services at Lewy Body Dementia Association, for insights into her role as an LBD professional.  […]
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Don’t Assume

My dad was originally diagnosed with Alzheimers 4 years ago, by a neurologist recommended to us by a friend. The Dr patted my mom on the arm and said “There’s […]
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The Strength of Deborah

Lewy body dementia (LBD) does not pick and choose who it will affect. LBD does not care about status, or what kind of support you may or may not have. […]
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Helping my LBD Mom Enjoy her new Norm

Linda H., at her stage of LBD, has moved from nearly full time home care to full time nursing home care. We hadn’t realize that she had reached a stage […]
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The Independence of Deborah

Lewy body dementia (LBD) does not pick and choose who it will affect. LBD does not care about status, or what kind of support you may or may not have. […]
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Wonder Twins Raising Awareness

Abigail and Liliana are ten-year-old twins who have put their incredible talents together to raise awareness of Lewy body dementia! They were inspired to help the mission of LBDA in […]
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LBD Takes on Ironman

Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]
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New LBD BLOG

Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]
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A Year Ago: When Was That?

A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]
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Lewy Body Dementie

Mijn partner heeft de diagnose LBD gehad enkele maanden geleden en dit n.a.v. het volgende voortraject. Hij heeft al sinds 1994 een slaap-apneu syndroom met , zoals we pas sinds […]
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Marvis, Lewy and Me

Here is my blog I started the first of the year. It has been a tough journey. I hope my stories can help you, inspire you and give you understanding […]
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James Wood

Hello, My dad has been living with Lewy Body Dementia for over 10 years now. At this point, he can no longer walk, bathe, or feed himself without assistance. Once […]
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Brother with special needs and LBD

My brother is now 68. When he was 3, he hit his head on the coffee table and due to lack of oxygen, caused trauma to his brain and became […]
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10 things I wish I had known sooner

Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]
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Down the rabbit hole

My mom was my best friend. I was the only girl in a family of six kids, so we were very close. She would come out to visit me from […]
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