Research Centers of Excellence
With the Research Centers of Excellence network, the LBDA collaborates with 27 of the nation’s leading LBD academic medical institutions to which people with LBD and their families can turn for advanced LBD diagnosis and treatment. Through our combined efforts we are connecting the LBD community with highly-specialized physicians and respected institutions that are committed to conducting LBD research.
The RCOE program and its investigators are collectively making remarkable contributions to our understanding of LBD and related disorders. For example, just in just over a year the investigators had nearly 165 manuscripts published. The following are those that reflect LBDA-supported research efforts:
To learn more about the published work of LBDA’s RCOE investigators, download the full list of citations.
Click on the RCOE location as indicated by the red pin to find out more information about that RCOE site
Arizona Collaborative RCOE
Name: Desiree Osborn (Mayo Clinic)
Email Address: Osborne.Desiree@mayo.edu
Phone Number: (480) 574-2234
Contact this person for: Clinical trials
Name: Erin Quackenbush (Mayo Clinic)
Email Address: Erin.Quackenbush@mayo.edu
Phone Number: (480) 301-8484
Contact this person for: Clinical Appointments
Name: Angela Kuramoto (BSHRI)
Email Address: Angela.Kuramoto@bannerhealth.com
Phone Number: 623-832-6511
Contact this person for: Clinical trials
Name: Ernestina Carrillo (BSHRI)
Email Address: Ernestina.Carrillo@bannerhealth.com
Phone Number: 623-832-6530
Contact this person for: Clinical Appointments
Barrow Neurological Institute in Phoenix, AZ
Clinic name: Barrow Neurology Clinics
Contact name: Dede Berry
Phone number: 602-406-5916
Email: Dorothy.Berry@dignityhealth.org
Website: Barrow Neurological Institute
Cleveland Clinic in Cleveland, OH
Clinic name: Cleveland Clinic Lou Ruvo Center for Brain Health
Contact name: Natalie Ehret
Email: ehretn@ccf.org
Phone number: 216-445-0907
Website: Lou Ruvo Center for Brain Health
Columbia University in New York, NY
Clinic name: Department of Neurology-Taub Institute
Phone number: (212) 342-5615 (Lamprine N. Whitney, MS, RD, RN, nurse coordinator)
Website: Taub Institute
Emory University in Atlanta, GA
Clinic name: The Emory Movement Disorders Clinic
Contact name: Amanda Goodwin
Email: agoodw7@emory.edu
Phone number: 404-712-3529
Contact this person for: support group or research studies (NOT clinical care)
**Please contact the Emory Neurology Scheduling Team if you wish to schedule an appointment with the Movement Disorders or Memory/Cognitive Care Divisions. (404) 778-3444**
Website: Emory Parkinson’s Disease and Movement Disorders Program
Houston Methodist in Houston, TX
General Email: lbd@houstonmethodist.org
Name: Griselda Mendez
Email: gmendez@houstonmethodist.org
Phone Number: 346-238-1566
Contact for: Appointments
Name: Amy Gomez
Email: aagomez@houstonmethodist.org
Phone Number: 713-344-3734
Contact for: Clinical Trials
Johns Hopkins University in Baltimore, MD
Clinic name: Atypical Parkinsonism Center
Website: Parkinson’s Disease and Movement Disorders Center
Massachusetts General Hospital in Boston, MA
Clinic name: Lewy Body Dementia Unit, Memory Disorders Unit
Contact name: Evelyn Albano
Phone number: 617-726-1728
Email: ealbano1@mgb.org
Contact this person for: public inquiries, appointments
Website: Memory Disorders Division
Mayo Clinic in Jacksonville, FL
Clinic name: Alzheimer’s disease Research Center
Phone number: 904-953-2677
Website: Memory Disorder Clinic
Mayo Clinic in Rochester, MN
Clinic name: Mayo Clinic Department of Neurology
Contact name: Nick Rethemeier
Email: Rethemeier.Nicholas@mayo.edu
Phone number: 507-538-4048
Contact this person for: general inquiries, clinical trials, support groups and other LBD related resources
Website(s): Neurology Department
Lewy Body Dementia Overview
Alzheimer’s Disease Research Center
Oregon Health & Science University in Portland, OR
Clinic name: OHSU Parkinson Center & Movement Disorders Program
Phone number: 503-494-7230
Website: Parkinson’s Disease and Movement Disorders
Rush University Medical Center in Chicago, IL
Clinic name: Rush Parkinson’s Disease and Movement Disorders Program
Phone number: 312-563-2900
Website: Parkinson’s Disease and Movement Disorders Program
Stanford University (Coordinating Center) in Palo Alto, CA
Clinic name: Division of Memory Disorders and the Division of Movement Disorders
Phone number: 650-723-6469
Website: Lewy Body Dementia Research Center of Excellence
Struthers Parkinson’s Center in Minneapolis, MN
The Medical University of South Carolina (MUSC)
The Ohio State University in Columbus, OH
Clinic name: Center for Cognitive and Memory Disorders
Contact name: Jennifer Icenhour
Email: Jennifer.Icenhour@osumc.edu
Phone number: 614-293-6882
Contact this person for: clinical trials, public inquiries
Website: Center for Cognitive and Memory Disorders
The Virginia Commonwealth University (VCU)
Contact Name: Kara McHaney
Email Address: kara.mchaney@vcuhealth.org
Phone Number: 804-828-4788
Contact for: Clinical Trials
Contact Name: Madison Clemons
Email Address: Madison.Clemons@vcuhealth.org
Phone Number: 804-827-1754
Contact for: Clinical Trials
Contact Name: Brittany Gibson
Email Address: brittany.fenner@vcuhealth.org
Phone Number: 804-360-4669
Contact this person for: Clinic Appointments
University of California, San Diego in San Diego, CA
Clinic Name: UC San Diego Neurological Institute
Contact name: Jo Talledo Benrubi
Email: atalledo@health.ucsd.edu
Phone number: 858-246-2505
Contact for: Clinical Trials
Contact name: Lisa Damron, MS, CMC
Email: ldamron@health.ucsd.edu
Phone number: 858-822-5873
Contact for: Clinic Appointments
Website: Neurological Institute
University of Colorado Anschutz Medical Campus in Aurora, CO
Name: University of Colorado Department of Neurology Clinical Research
Email: NeuroResearch@CUAnschutz.edu
Phone number: 303-724-4644
Contact for: Clinical Trials
Name: UCHealth Neurosciences Clinic
Phone number: 720-848-2080
Contact for: Clinic Appointments
University of Florida in Gainesville, FL
Clinic name: Norman Fixel Institute for Neurological Diseases
Appointments Phone number: 352-294-5400
Website: Fixel Center for Neurological Diseases at UF Health
University of Miami in Miami, FL
Clinic name: Comprehensive Center for Brain Health
Contact Name: Christopher Rodriguez
Phone: 561-869-6808
Email: cxr1561@miami.edu
Website: Comprehensive Center for Brain Health
University of Michigan in Ann Arbor, MI
Clinic name: Michigan Alzheimer’s Disease Research Center
Contact name: Renee Gadwa
Email: rgadwa@med.umich.edu
Phone number: 734-764-5137
Website: Michigan Alzheimer’s Disease Research Center
University of North Carolina, Chapel Hill in Chapel Hill, NC
Name: Lindsey Hildebrand
Email: hildebrandl@neurology.unc.edu
Phone Number: 984-974-4401
Contact for: Clinical Trials
Clinic name: UNC Hospitals Neurology Clinic
Email: hildebrandl@neurology.unc.edu
Website: med.unc.edu/neurology/divisions/memory-and-cognitive-disorders-1/
Contact for: Clinic Appointments
University of Pennsylvania in Philadelphia, PA
Name: Alexandria Oliver
Email: Alexandria.oliver@pennmedicine.upenn.edu
Phone Number: 215-829-7104
Contact for: Clinical Trials
Name: Suzanne Reichwein, MSW
Email: sreichwein@pennmedicine.upenn.edu
Phone Number: 215-829-7273
Contact for: Clinic Appointments
Website: Penn Frontotemporal Degeneration Center
Parkinson’s Disease and Movement Disorders Center
Udall Center for Parkinson’s ResearchParkinson’s Disease Research, Education and Clinical Centers
University of Pittsburgh in Pittsburgh, PA
University of Washington in Seattle, WA
Clinical Trials Email: uwadrc@uw.edu
Clinical Trials Phone: 844-201-5480
Name: UW Medicine Memory and Brain Wellness Clinic
Phone Number: 206-520-5000
Contact this person for: Clinic Appointments
Name: Geriatric Research, Education, and Clinical Center (GRECC) at the Seattle VA Medical Center
Phone Number: 833-983-0486
Contact this person for: Clinic Appointments
Website: UW Memory & Brain Wellness Center
UT Health in San Antonio, TX
Name: Monica Goss
Email: gossm@uthscsa.edu
Phone: 210-450-8073
Contact this person for: Clinical Trials
Name: Patricia Campina
Email: campina@uthscsa.edu
Phone: 210-450-9960
Contact this person for: Clinic Appointments
All Centers
Barrow Neurological Institute in Phoenix, AZ
Cleveland Clinic in Cleveland, OH
Columbia University in New York, NY
Emory University in Atlanta, GA
Houston Methodist in Houston, TX
Johns Hopkins University in Baltimore, MD
Massachusetts General Hospital in Boston, MA
Mayo Clinic in Jacksonville, FL
Oregon Health & Science University in Portland, OR
Rush University Medical Center in Chicago, IL
Stanford University in Palo Alto, CA
Struthers Parkinson’s Center, MN
The Medical University of South Carolina
The Ohio State University in Columbus, OH
The Virginia Commonwealth University in Richmond, VA
University of California, San Diego in San Diego, CA
University of Colorado Anschutz Medical Campus in Aurora, CO
University of Florida in Gainesville, FL
University of Miami in Miami, FL
University of Michigan in Ann Arbor, MI
University of North Carolina, Chapel Hill in Chapel Hill, NC
University of Pennsylvania in Philadelphia, PA