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Biomarkers in LBD, a clinical study by the DLB Consortium (DLBC)

What is this study about?

The purpose of this study is to collect clinical information, brain imaging scans, and biological samples from people that have dementia with Lewy bodies. This information will help researchers gain a better understanding of the biology behind LBD.

What is involved?

Participants will be enrolled in the study and have annual study visits for several years. This allows for researchers to collect vital information and samples over time as the disease evolves.

Participants will have an initial assessment that includes an MRI and a DaTScan. The study coordinator will provide further information as to what the study entails.

Who can participate?

Those that meet the following may be able to take part in the study:

  • Has a diagnosis of
    • probable dementia with Lewy bodies (DLB) or
    • mild cognitive impairment that is suspected to progress to DLB
    • Parkinson's disease dementia
  • Has a study partner who is able to attend study visits

Study Locations:

The study will be conducted at the below locations:

StateCityAcademic CenterStudy CoordinatorEmail and Phone Number
CASan DiegoUniversity of California, San DiegoJo A. Talledo Benrubi

[email protected]

(858) 246-2505

ILChicagoRush University Medical CenterJada Houston

[email protected]

(312)-942-8799

NCChapel HillUniversity of North CarolinaLindsey Hildebrand

[email protected]

(919) 966-1350

OHClevelandCleveland Clinic Lerner College of MedicineNatalie Lee

[email protected]

(216) 445-0907

PAPhiladelphiaUniversity of PennsylvaniaAshlyn O’Halloran

[email protected]

(215) 746-3836

PAPittsburghUniversity of PittsburghCary Zik

[email protected]

(412) 692-2719

WASeattleVA Puget Sound Health Care System/University of WashingtonSarah Payne

[email protected]

(206) 277-1379

Study Sponsor:

National Institutes of Health and The Lewy Body Dementia Association

Still have questions?

To learn more about the study or find out if you are eligible to participate, please contact the closest study site listed above, or Krista Dashtestani, Project Manager, VA Puget Sound Health Care System at 206-277-4587.

10 Things

You Should Know About LBD

Knowledge is your first step toward understanding LBD. Discover the essential facts that can help you recognize symptoms, support loved ones, and navigate this journey with confidence.

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Learn about LBD

Educational resources to assist individuals with LBD, their families and healthcare providers.

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Education & Support

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Webinars

LBDA's 2026 Community Webinar Series, Insights, Innovations & Everyday Impact, features a free, monthly webinar to help you live optimally with Lewy.

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Lewy Publications

Information for patients, families and professionals.

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