What is this study about?
The purpose of this study is to collect clinical information, brain imaging scans, and biological samples from people that have dementia with Lewy bodies. This information will help researchers gain a better understanding of the biology behind LBD.
What is involved?
Participants will be enrolled in the study and have annual study visits for several years. This allows for researchers to collect vital information and samples over time as the disease evolves.
Participants will have an initial assessment that includes an MRI and a DaTScan. The study coordinator will provide further information as to what the study entails.
Who can participate?
Those that meet the following may be able to take part in the study:
- Has a diagnosis of
- probable dementia with Lewy bodies (DLB) or
- mild cognitive impairment that is suspected to progress to DLB
- Parkinson’s disease dementia
- Has a study partner who is able to attend study visits
Study Locations:
The study will be conducted at the below locations:
| State | City | Academic Center | Study Coordinator | Email and Phone Number |
| CA | San Diego | University of California, San Diego | Jasmin Hernandez | jah022@health.ucsd.edu (858)-246-2533 |
| FL | Boca Raton | University of Miami | Marcia Walker | mxw905@med.miami.edu |
| IL | Chicago | Rush University Medical Center | Jada Houston | Jada_Houston@rush.edu (312)-942-8799 |
| NC | Chapel Hill | University of North Carolina | Brittni Teresi | DLBC@neurology.unc.edu (919) 843-8673 |
| OH | Cleveland | Cleveland Clinic Lou Ruvo Center for Brain Health | Justine De Angelis | deangej2@ccf.org (216) 636-5522 |
| PA | Philadelphia | Thomas Jefferson University | Samantha Mayer | samantha.mayer@jefferson.edu (215) 955-4673 |
| PA | Philadelphia | University of Pennsylvania | Soham Bharne | Pandurang.Bharne@Pennmedicine.upenn.edu (215) 349-5863 |
| PA | Pittsburgh | University of Pittsburgh | Donna Simpson | simpsondm@upmc.edu (412) 692-2717 |
| WA | Seattle | VA Puget Sound Health Care System/University of Washington | Sarah Payne | sarah.payne@va.gov (206) 277-1379 |
| NV | Las Vegas | Cleveland Clinic Lou Ruvo Center for Brain Health – Las Vegas | Karina Statkevich | STATKEK@ccf.org (702) 701-7972 |
Study Sponsor:
National Institutes of Health and The Lewy Body Dementia Association
Still have questions?
To learn more about the study or find out if you are eligible to participate, please contact the closest study site listed above, or Anna Sturtevant, Study Coordinator, Cleveland Clinic at 216-445-1155.