Genetics studies in dementia with Lewy bodies

What is this study about? Investigators at the John P. Hussman Institute for Human Genomics (HIHG) want to understand the genetics of Lewy body dementia. Researchers hope to reduce the […]
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Environmental and Reproductive Health Risk for Lewy Body Dementia (LBD – TOROS)

What is this study about? Lewy body dementia, including Parkinson’s disease dementia and dementia with Lewy bodies, can occur differently for women and men, although we are not sure why. […]
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Connect2Caregivers (C2C) Research Study

What is this study about? The Connect2Caregivers Research Study, an NIH funded research study, is being done to develop a unique matching process for caregivers of persons living with dementia, […]
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VOCALE LBD+: Virtual Online Communities for Aging Life Experiences – Lewy Body Dementia

What is this study about? VOCALE LBD+ is an 8-week online support program for caregivers of people with Lewy Body Dementia. The program takes place on a private online discussion […]
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Evaluating A Diagnostic Test for Dementia with Lewy Bodies, the Syn-D Study

The Syn-D Study is a research study that aims to distinguish dementia with Lewy bodies (DLB) from Alzheimer’s disease in people at the early stages. This study may help advance […]
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Trial of Parkinson’s and Zoledronic Acid (TOPAZ)

What is this study about? People with neurodegenerative parkinsonism, including Lewy body dementia as well as Parkinson’s disease, multiple system atrophy (MSA), progressive supranuclear palsy (PSP), and corticobasal syndrome (CBS), […]
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RewinD-LB: A Phase 2b Clinical Study of the P38 Alpha Kinase Inhibitor Neflamapimod in Patients with Dementia with Lewy Bodies (DLB)

What is this study about? DLB is characterized by progressive dementia, and fluctuating problems with memory and attention. Sleep disturbances, hallucinations, as well as tremors and problems with movement (called […]
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Study to Evaluate the Safety, Tolerability and Efficacy of CT1812 in Subjects With Mild to Moderate Dementia With Lewy Bodies (SHIMMER)

Dementia with Lewy bodies (DLB) is a progressive disorder affecting thinking, movement, behavior and sleep. Because currently there are no FDA-approved treatments for DLB, developing safe and effective treatments is […]
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Skin and Tissue Biomarker Study – Cleveland, OH

What is this study about?  The purpose of this study is to study whether skin or tissue samples can be used to can distinguish Lewy body dementias from other types of dementia, and from control […]
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Modelling Visual Hallucinations using Deep Neural Networks

Visual hallucinations are a common symptom of Lewy body dementias (LBD). But little is known about why hallucinations are so vivid in LBD compared to psychiatric disorders, or why they […]
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PACE-DLB Study

Predicting ACcurately End-of-Life in Dementia with Lewy Bodies and Promoting Quality End-of-Life Experiences (PACE-DLB) This study will explore disease progression and care needs for persons with advanced dementia with Lewy […]
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Lewy Body Dementia Biomarkers Study at University of Michigan

People with LBD present with different combinations of symptoms and severity, which can make diagnosis a challenge. Understanding whether one or more disease processes are underway may help diagnose and […]
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New Lewy Body Disorders Study at Columbia University

What is this study about? The aim of this study is to develop better biomarkers for diagnosis and treatment of Lewy body disorders. In particular, there is a need to […]
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Biomarkers in LBD, a clinical study by the DLB Consortium (DLBC)

What is this study about? The purpose of this study is to collect clinical information, brain imaging scans, and biological samples from people that have dementia with Lewy bodies. This […]
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