Genetics studies in dementia with Lewy bodies

What is this study about?

Investigators at the John P. Hussman Institute for Human Genomics (HIHG) want to understand the genetics of Lewy body dementia (LBD). Researchers hope to reduce the risk factors for developing Lewy body dementia. As the genetic components underlying LBD are identified diagnostic and treatment options should improve.


What’s involved?

  • Read and sign a consent form.
  • Give a family and medical history.
  • Answer a short environmental risk factor questionnaire.
  • Take tests of memory, thinking, mood, and concentration.
  • Complete a brief neurological examination.
  • Give permission to review the medical records of the individual with memory and thinking problems.
  • Provide a blood sample.


Who can participate?

  • Individuals with a diagnosis of Lewy body dementia
  • Families that have 2 or more members with Lewy body dementia, both of whom are willing to participate in the study and any of their brothers and sisters who do not have a dementia disorder and are willing to participate
  • The partners of individuals with Lewy body dementia or anyone over the age of 65 without memory problems as part of the study’s non-dementia comparison group


Study Sites

All aspects of the study can be completed virtually (online)


Study Sponsor

National Institutes of Health and the Alzheimer’s Association.


For more information

Study Coordinator

Toll Free: 1-877-582-8788 or 305-243-1981