Environmental and Reproductive Health Risk for Lewy Body Dementia (LBD – TOROS)

What is this study about?

Lewy body dementia, including Parkinson’s disease dementia and dementia with Lewy bodies, can occur differently for women and men, although we are not sure why. The ratio of women to men for the disease prevalence changes with older age, suggesting a potential role for reproductive factors, particularly for women. Environmental factors impact the risk for other types of dementia, although such factors have not been clearly described in Lewy body dementia specifically. Women and men may get exposed to different environmental and occupational risk factors, and the impact of factors can differ for women and men. By using a one-time survey that can be completed online or over the phone, we will try to understand which environmental, occupational or reproductive health factors play a role in Lewy body dementia for women and men. By comparing the survey responses of people with Lewy body dementia and people without Parkinson’s or memory/thinking problems, we aim to identify specific risk factors for women and men that can guide future treatment efforts and provide more insight into this dementia.


What’s involved?

Participants will complete an anonymous 30-45 minute online or phone survey. The survey includes questions on health history, reproductive health, environmental and occupational factors one may or may not have been exposed to.

Contact information and survey responses are stored separately to ensure results are not matched to individual participants; allowing an opportunity for participants to receive a gift card for their contribution.


Who can participate?

An individual may be able to take part in the study if he/she is either:

  • Diagnosed with Lewy body dementia (Parkinson’s disease dementia or Dementia with Lewy bodies)


  • Does not have memory, thinking problems or Parkinson’s disease.
  • For controls: Normal cognition


Study Sites

This study can be completed online or over the phone.

To complete online follow this link https://redcap.link/LBDTOROS.

To complete over the phone please call Hamidreza Ghodsi, MD at (858) 822-1399


Study Sponsor

Lewy Body Dementia Association


For more information

Reilly Thompson
Phone: (858) 246-3190