Care and Research Priorities in Lewy Body Dementia

The personal experiences of people with LBD and their care partners/caregivers can provide important insights that can inform research. The ‘lived experience’ sheds light about how LBD affects individuals, which […]
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PACE-DLB Study

Predicting ACcurately End-of-Life in Dementia with Lewy Bodies and Promoting Quality End-of-Life Experiences (PACE-DLB) This study will explore disease progression and care needs for persons with advanced dementia with Lewy […]
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Lewy Body Dementia Biomarkers Study at University of Michigan

People with LBD present with different combinations of symptoms and severity, which can make diagnosis a challenge. Understanding whether one or more disease processes are underway may help diagnose and […]
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Harvard LBD Biomarker Study (Boston, MA)

People with LBD (including dementia with Lewy bodies and Parkinson’s disease dementia) experience life-altering changes in their cognitive abilities. This affects the quality of life for both the person with […]
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New Lewy Body Disorders Study at Columbia University

What is this study about? The aim of this study is to develop better biomarkers for diagnosis and treatment of Lewy body disorders. In particular, there is a need to […]
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Biomarkers in LBD, a clinical study by the DLB Consortium (DLBC)

What is this study about? The purpose of this study is to collect clinical information, brain imaging scans, and biological samples from people that have dementia with Lewy bodies. This […]
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