Lewy Body Dementia Caregiver Study

Lewy body dementia (LBD; including both dementia with Lewy bodies and Parkinson’s disease dementia) is the second most common form of dementia caused by brain degeneration, accounting for 4% to […]
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Efficacy of a Caregiver Training Program in Enhancing Caregiver and Patient Outcomes

The purpose of this study is to evaluate an app-based digital platform that offers both educational and self-care training to caregivers providing support to people living with dementia, including Lewy […]
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Personalized Tool for AD/ADRD Caregivers Addressing Financial Management and Legal Planning—Phase II (The FinLe Study)

For dementia care partners, legal and financial planning are common sources of distress, and few resources exist to assist them in these activities. What is this study about? The purpose […]
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Neurodegeneration and Neuronal Fluctuations in Lewy Body Disease and Alzheimer Disease

What is this study about? This study is investigating structural changes in the brain and how these changes relate to clinical symptoms in individuals with cognitive impairment due to Lewy […]
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BEAM- Brain-Eye Amyloid Memory Study

What is this study about? This study is examining if measurements of the eye can be used with other tests to detect dementia earlier. By comparing the results of non-invasive […]
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Peer Mentoring Support and Caregiver Education (PERSEVERE)

What is this study about? This study is testing an educational program for family care partners of people with Parkinson’s disease dementia (PDD) or dementia with Lewy bodies (DLB). What’s […]
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Care-Resistant Behavior Internet Training for Caregiver Networks (CuRB-IT:CaN)

What is this study about? The Care-Resistant Behavior Internet Training for Caregiver Networks (CuRB-IT:CaN) Study is testing the feasibility of delivering an existing coaching intervention called “Care-Resistant Behavior Internet Training” […]
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Development and testing of the Lewy Body Disease Caregiver Activities Scale (LBD-CAS)

What is this study about? This preliminary study aims to understand the needs, concerns, strategies, and advice of family caregivers of persons with Lewy body disease. Then, utilizing information gathered, […]
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Peripheral Biomarkers in Dementia with Lewy Bodies and Mild Cognitive Impairment with Lewy Bodies

What is this study about? This study will examine inflammation in people with Dementia with Lewy Bodies (DLB) and Mild Cognitive Impairment with Lewy Bodies (MCI-LB) to examine the correlation […]
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CAMELOT Comparing Antipsychotic Medications in Lewy body disease Over Time

What is this study about? This study compares the effectiveness of the two most prescribed medications for the treatment of hallucinations in Parkinson’s Disease and dementia with Lewy bodies: quetiapine […]
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BEYONDD (Biomarker Evaluation in Young Onset Dementia from Diverse Populations)

What is this study about? Despite recent advances in understanding the biology of LBD and other causes of dementia, too little is known about how cognitive impairment develops in the […]
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Genetics studies in dementia with Lewy bodies

What is this study about? Investigators at the John P. Hussman Institute for Human Genomics (HIHG) want to understand the genetics of Lewy body dementia (LBD). Researchers hope to reduce […]
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Connect2Caregivers (C2C) Research Study

What is this study about? The Connect2Caregivers Research Study, an NIH funded research study, is being done to develop a unique matching process for caregivers of persons living with dementia, […]
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Trial of Parkinson’s and Zoledronic Acid (TOPAZ)

What is this study about? People with neurodegenerative parkinsonism, including Lewy body dementia as well as Parkinson’s disease, multiple system atrophy (MSA), progressive supranuclear palsy (PSP), and corticobasal syndrome (CBS), […]
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Skin and Tissue Biomarker Study – Cleveland, OH

What is this study about?  The purpose of this study is to study whether skin or tissue samples can be used to can distinguish Lewy body dementias from other types of dementia, and from control […]
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Biomarkers in LBD, a clinical study by the DLB Consortium (DLBC)

What is this study about? The purpose of this study is to collect clinical information, brain imaging scans, and biological samples from people that have dementia with Lewy bodies. This […]
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