Caregiving Publications
The Role of Palliative and Hospice Care in Lewy Body Dementia While it may be uncomfortable to consider caregiving needs of end-stage LBD, palliative care and hospice help both the […]
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Unexpected Benefits of Speech Therapy
By Pat Snyder, Author of Treasures in the Darkness A little before Thanksgiving 2012, Lucy Butler, John’s speech therapist, suggested that he begin to work on scripts. Scripts are short […]
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Order LBDA Materials
Place an order today for free resources from LBDA. The default order size, already entered in the quantity block, is the maximum number of each publication that can be ordered. […]
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LBDA Social Networking
Social networking is an easy way to connect with other people affected by disease with Lewy bodies. LBDA has active Facebook, LinkedIn, and Twitter communities. Connect with us to receive […]
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Submit An LBD Story
LBDA invites you to submit a personal LBD story for possible inclusion in our website, newsletter or other publications. Stories can be up to 1,000 words in length. Submissions must […]
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Volunteer of the Year Award
Volunteers are the cornerstone of LBDA. LBDA volunteers help raise awareness, provide support when it is most needed, raise funds to help LBDA grow, and connect people in our community […]
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Additional Resources
LBDA is working to provide relevant resources to assist Lewy body dementia patients, their families, and physicians. It is our aim to make LBD as common as a term as Alzheimer’s some […]
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Lewy Digest
Sign up to receive LBDA’s e-news publication, the Lewy Digest, which includes up-to-the-minute information about LBD clinical and research advances, educational resources on LBD, inspiring stories, and more. Signing up with LBDA allows […]
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10 Things You Should Know about LBD
Lewy body dementias (LBD) affect an estimated 1.4 million individuals in the United States. At the Lewy Body Dementia Association, we understand that though many families are affected by this […]
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Materials
LBDA provides educational resources to assist individuals with LBD, their families and healthcare providers. Single copies may be downloaded and printed at your convenience. Click here for information on how […]
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Treatment Options
LBD is a multi-system disease and typically requires a comprehensive treatment approach, meaning a team of physicians from different specialties, who collaborate to provide optimum treatment of each symptom without […]
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Research
New Report – Lewy Body Dementia: State of the Science We are entering an era of unprecedented opportunity for understanding and treating Lewy body dementia (LBD). Our newest white paper, […]
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Volunteer
Volunteers are the cornerstone of our organization and are vital to raising awareness in the communities in which they live and work. Our team is composed of volunteers throughout the […]
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Symptoms
Each person with LBD is different in terms of which symptoms they have in the beginning. The most common symptoms include changes in thinking, behavior, movement, and sleep. Dementia refers […]
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LBDA Lewy Line
Those living with Lewy body dementia, care partners, and others can connect to the licensed professionals with LBDA Support Services through the LBDA Lewy Line or email. Support Services (and […]
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Diagnosis and Prognosis
How is LBD diagnosed? Doctors diagnose LBD based on the patient’s history, examination, and possibly other blood tests or brain scans to exclude other causes of dementia, movement disorders, or […]
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Is It LBD or Something Else?
Sometimes early dementia symptoms can be vague, making the type of dementia hard to identify. It may take several years for enough symptoms to develop to point to a specific […]
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What Is Lewy Body Dementia?
Lewy body dementia (LBD) is the 2nd most common type of progressive dementia after Alzheimer’s disease. LBD is not a rare disease. It affects more than a million people in […]
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About LBDA
The Lewy Body Dementia Association (LBDA) is a 501(c)(3) nonprofit organization dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers and […]
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Caregiver Burden in Lewy Body Dementias
Disabling diseases like LBD affect not only the individual diagnosed with the illness, but also caregivers, families, and friends. Caregiver Burden in Lewy Body Dementias provides a quantitative overview of […]
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