Positive Results for the HARMONY Clinical Trial of Pimavanserin in Dementia-Related Psychosis
In December ACADIA Pharmaceuticals presented its top-line results from its Phase 3 clinical trial of pimavanserin in people who had dementia-related psychosis. The results had been eagerly awaited; ACADIA stopped […]
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LBDA’s Contributions to the Scientific Community
Throughout the year, LBDA staff have been traveling across the country to promote discussion and awareness of Lewy body dementias in local communities and at national conferences. Here are just a […]
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LBD Caregiver Experience Differs Between Spouses and Adult Children
Being a dementia caregiver can have a negative impact on one’s psychological well-being. But what is specifically known about the impact of LBD caregiving? And how it might differ based […]
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Updated LBD Research Recommendations Published
Every 3 years, a national research summit is held to update research strategies for non-Alzheimer’s dementias. This 2-day national event is one of 3 rotating summits held in response to […]
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National Institutes of Health Award $14 million for LBD Research
People who have LBD plus changes in the brain associated with Alzheimer’s disease tend to have more aggressive disease progression. However, science has not yet explained why these two disease […]
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Rate of Dementia Diagnosis Varies by Clinician Type and Patient Race/Ethnicity
With an aging population and life expectancies on the rise, the number of people with dementia in the U.S. is projected to reach nearly 12 million in 20 years. However, […]
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Treatment Study Halted Early Because of Promising Results
With all the recent news about failed clinical trials for disease-modifying treatments for Alzheimer’s disease, a little encouraging news is timely. ACADIA Pharmaceuticals announced an early end to one of […]
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LBD is the Most Expensive Dementia in America
Dementia is one of the most expensive diseases in the United States, increasing healthcare costs 3 times over those without dementia. Until now, studies on the costs of different dementia […]
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NINDS: Hunting for an LBD Biomarker
Did you know that the National Institute of Neurological Disorders and Stroke (NINDS) plays a leading role in funding research on Lewy body disorders? Because LBD and Parkinson’s disease share […]
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What Happened In Vegas WON’T Stay in Vegas
Hundreds of LBD researchers, clinicians and families gathered in Las Vegas, NV in June for the 2019 International LBD Conference. Organized by the Cleveland Clinic with assistance from LBDA, it […]
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Imaging Can Aid in DLB Diagnosis Before Dementia Onset
As there is no single symptom pattern that signals the start of dementia with Lewy bodies (DLB), getting a diagnosis is commonly delayed. Finding a definitive medical test that confirms […]
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Increased Hospitalization in DLB Compared to AD
A study out of the U.K. revealed that people with one form of LBD, specifically, dementia with Lewy bodies and more frequently admitted to general hospitals that people with Alzheimer’s […]
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Preparing LBD Families about End of Life
End of life factors are known to be different in LBD compared to Alzheimer’s disease. The progression of LBD averages 5-7 years from onset to end of life. This is […]
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Contact Sports Linked to Lewy Body Disease
It’s been long known that people who have traumatic brain injuries are at an increased risk for a progressive brain disorder called chronic traumatic encephalopathy (CTE). They also are at […]
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LBD Diagnostic Symptoms Checklist
Because Lewy body dementia is the most misdiagnosed form of dementia, LBDA developed a useful checklist to help physicians and their patients identify key LBD symptoms used to make a […]
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Lewy and Lumbar Punctures
Did you know that spinal fluid is extremely valuable in LBD research? It allows scientists to study changes in the levels of proteins that might be associated with LBD, Alzheimer’s […]
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A Simple, 3-Minute Test May Aid in Diagnosing Lewy Body Disorders.
Researchers with the U.S. Autonomic Disorders Consortium have shown a simple, bedside test can help spot underlying neurological disorders like Lewy body dementia (LBD) in people who have orthostatic hypotension […]
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Scientific Advance: Diagnosing LBD in Living Persons
An LBD research advance by scientists at the National Institutes of Health (NIH) is making headlines. Using a procedure called a lumbar puncture (or spinal tap), researchers diagnosed two Lewy […]
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Epilepsy Treatment Shows Promise in DLB
Motor symptoms improved with add-on therapy of seizure medication. Researchers in Japan published promising data on a Phase II clinical trial on an existing medication (for seizures) in people with […]
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Research Advance: DLB Genetics Uniquely Different from Parkinson’s
The human genome is a complete set of a person’s DNA. Serving as a blueprint for all cells in the body, the genome contains about 20,000 genes. The first human […]
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