Ask the Expert: Why Can’t All People with LBD Take the Same Medications?

Q: Why can’t all people with LBD take the same medications? A: Understanding treatment response first requires you understand the difference between treating the disease process and treating the symptoms. LBD has […]
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Ask the Expert: Medical Marijuana – What Do We Know?

With many states legalizing the use of medical marijuana (compounds called cannabinoids), and some even making it legal for recreational use, you might be wondering if it would be beneficial […]
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Brain Autopsies and Brain Donations

1. Who should get a brain autopsy and why? A brain autopsy is the only definitive way to diagnose Lewy body dementia. Anyone who desires confirmation that a clinical diagnosis […]
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Medications Glossary: Drug Classes and Medications

This glossary was developed for LBD families and provides helpful information about medications used to treat cognitive, motor, mood or behavioral disorders. The publication may be useful in discussing the […]
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Treatment of Behavioral Symptoms: When to Consider Antipsychotic Medications in LBD

Introduction LBD is a complex disease that can present with a range of physical, cognitive, and behavioral symptoms. Many caregivers find that behavioral symptoms (e.g., hallucinations, delusions, aggression, agitation, apathy, […]
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Comprehensive LBD Symptoms Checklist

Lewy body dementia (LBD), while progressive, is considered by experts to be a highly treatable form of dementia. Yet many LBD symptoms go untreated, leaving people with LBD and their […]
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Facing Lewy Body Dementia Together: an Introduction to LBD

How to get your copy: To download a PDF of the printed publication, An Introduction to Lewy Body Dementia,for home printing, click here. (NOTE: This PDF file includes the Medical Alert Wallet Card.) […]
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LBD Medical Alert Wallet Card

Click here to download a JPEG of LBDA’s Medical Alert Wallet Card.  This Medical Alert Wallet Card has been developed to help you quickly inform Emergency Room medical professionals of important medication sensitivities […]
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Understanding LBD

Printed Resources for Understanding LBD LBDA provides educational resources to assist individuals with LBD, their families and healthcare providers. Click the titles below to read and print a single copy. […]
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Is It Lewy?

To view or download a .pdf of this publication, click here.  Recognizing when it’s not Alzheimer’s or Parkinson’s disease. FACT: Lewy body dementia (LBD) is the most misdiagnosed form of dementia. […]
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Understanding Behavioral Changes in Dementia

Click here to download a PDF of this document. by Tanis J. Ferman, PhD, Mayo Clinic, Glenn E. Smith, PhD, Mayo Clinic, and Briana Melom, MA, LSW Quick Links: Introduction Using […]
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The Role of Palliative and Hospice Care in Lewy Body Dementia

Click here to download a pdf of this document. Introduction What is Palliative Care? The Clinical Course of Lewy Body Dementia What is Hospice Care? Comparison of the Features of […]
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Awareness & Fundraising Events

Plan a Virtual Fundraising Event Get involved Take action and get involved in the fight against Lewy body dementia by planning a Virtual Fundraising Event. Learn more Plan a Community […]
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Financials & Disclaimers

IRS Form 990 Download 2021 Annual Report Download Nonprofit Solicitation State Compliance Statement   ARKANSAS – Ark. Code Ann. § 4-28-412(12), (A)-(B)Every charitable organization that solicits in Arkansas, and uses […]
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The LBDA Industry Advisory Council (IAC)

LBDA is committed to engaging research stakeholders across all sectors. In 2019 LBDA formed an Industry Advisory Council (IAC) to convene leaders in the LBD academic medical/scientific community, federal agencies […]
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An extraordinary man. An extraordinary mind.

View Trailer Rent “Robin’s Wish” Donate Robin’s Wish: An intimate look into Robin Williams and his battle with Lewy body dementia. Robin Williams’ final days are the subject matter of […]
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Honor Your Loved One

With your donation of $100 and your personal photo, you can create a meaningful design to honor your loved one. The design you create and the message you select will […]
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Host a 5K

Host a 5K run/walk in your city and help us beat Lewy! Lace up, so we can take Lewy down! Help us grow the LBD5K and host your own event. […]
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