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Lewy Body Dementia Association
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Lewy Body Dementia Association
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    • Learn About LBD
      • Understanding LBD
      • Is It LBD or Something Else?
      • What Is Lewy Body Dementia?
      • 10 Things You Should Know about LBD
      • Diagnosis and Prognosis
      • Symptoms
      • Treatment Options
      • LBD Diagnostic Symptoms Checklist
    • Find Support
      • LBDA Lewy Line
      • Support Groups
      • Submit An LBD Story
      • LBD Stories
    • Research
      • Research News
      • Research Funding
      • Clinical Studies
      • Research Centers of Excellence
      • LBDA Industry Advisory Council
    • Resources
      • Sign-Up for the Lewy Digest
      • Lewy Digest – Archive
      • FREE LBDA Materials
      • LBDAtv
      • Blog
      • Caregiving Publications
      • Additional Resources
      • Understanding LBD
      • LBD Diagnostic Symptoms Checklist
      • LBD: State of the Science
      • Lewy and Lumbar Punctures
      • Information for Patients, Families, and Professionals
    • About Us
      • Board of Directors
      • Staff
      • LBDA Scientific Advisory Council (SAC)
      • LBDA Industry Advisory Council
      • Volunteer With Us
      • Dorothy Mangurian Volunteer of the Year Awards
      • LBDA Social Networking
      • Financials & Disclaimers
      • Contact
    • Ways to Give
      • Donate
      • Awareness & Fundraising Events
      • Volunteer
      • Honor Your Loved One
      • Donor Advised Funds (DAF)
      • More Ways to Advance LBDA’s Mission With Your Gift
      • Vehicle, Real Estate and In-Kind Donations

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Lewy Body Dementia Association

13 hours ago

Lewy Body Dementia Association

A poem by Deborah Isphording dedicated to her father with LBD:

A VISIT WITH DAD
I’ve come to visit dad.
He sits there in his chair.
My father, the man I’ve known all my life – who’s loved me and made me the person I am.
There’s a vacant look in his eyes. He seems confused.
Memories are scattered on the floor around his feet.
I pick one up…
It’s my father laughing with the guys at the firehouse (he loved it there).
Here’s another. I remember this one… he’s fishing for carp – me, sunnies. We’re eating sandwiches, sitting in contented silence, waiting for the fish to bite.
That one makes me smile.
I look through a few more…
Here he is, watching, with pride, as his young bride walks towards him down the aisle.
Here, he’s holding his newborn child for the first time, a tear of joy in his eye.
They used to mean so much to him, these memories, but there they are, scattered around him.
He can’t reach them… can’t pick them up.
I gather them together and put them in my pocket.
I’ll save them for you, dad.
I’ll hold them for you…
We’ll share them later.
💜
... See MoreSee Less

A poem by Deborah Isphording dedicated to her father with LBD:

A VISIT WITH DAD
I’ve come to visit dad.
He sits there in his chair.
My father, the man I’ve known all my life – who’s loved me and made me the person I am.
There’s a vacant look in his eyes. He seems confused.
Memories are scattered on the floor around his feet.
I pick one up…
It’s my father laughing with the guys at the firehouse (he loved it there).
Here’s another. I remember this one… he’s fishing for carp – me, sunnies. We’re eating sandwiches, sitting in contented silence, waiting for the fish to bite.
That one makes me smile.
I look through a few more…
Here he is, watching, with pride, as his young bride walks towards him down the aisle.
Here, he’s holding his newborn child for the first time, a tear of joy in his eye.
They used to mean so much to him, these memories, but there they are, scattered around him.
He can’t reach them… can’t pick them up.
I gather them together and put them in my pocket.
I’ll save them for you, dad.
I’ll hold them for you…
We’ll share them later.
💜
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This is so beautiful I lost my Dad 2 months ago to Lewy body dementia, although he had gone a couple of years before, I miss him dreadfully. I also wrote poetry it helps me cope with my loss. Take care and stay strong ❤️

How beautiful. Thank you for writing what is in all our hearts.

Beautiful. My dad passed away 7.5 years ago with LBD, he came to visit me Sunday morning on Father's Day. Something I won't forget

Very touching & beautiful- Still so many to be educated about-"Lewy Body Dementia"- Unfortunately can go on for several years before being diagnosed- Helps to relate that "Robin Williams" the comedian had "Lewy Body deposits on his brain to understand-

Beautiful. Thank you.

This is very beautiful ❤️

How beautiful! <3

Losing my Dad to this a year ago - this made me cry, it’s so beautiful

❤️

💔

💔💜

Cindy Minnema - 🥰

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Lewy Body Dementia Association

1 day ago

Lewy Body Dementia Association

Wednesday Tip! Are you prepared for a trip to the hospital? Being an informed hospital consumer can help you work effectively with hospital staff. Even more important is being an empowered advocate on behalf of the person with LBD.

To read more, follow the link here> ow.ly/ZlT350ELf8Y
... See MoreSee Less

Wednesday Tip! Are you prepared for a trip to the hospital? Being an informed hospital consumer can help you work effectively with hospital staff. Even more important is being an empowered advocate on behalf of the person with LBD.

To read more, follow the link here> http://ow.ly/ZlT350ELf8Y
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  • Likes: 3
  • Shares: 14
  • Comments: 0

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