By Latoysa Scaife-Rooks, MPH
LBDA Volunteer and Family Services Coordinator
LBDA staff and volunteers have many opportunities to attend outreach events and professional meetings at the local and national level in an effort to increase awareness about LBD and to develop strategic partnerships with organizations to help advance LBDA’s mission. I was privileged to attend the CARE-NET Coalition meeting sponsored by The Rosalynn Carter Institute for Caregiving (RCI). CARE-NET (Caregivers Network) program is a volunteer coalition of caregiver support organizations focused on a broad array of illnesses and disabilities. RCI and CARE-NET have established a statewide advocacy group to promote the health of Georgia's caregivers – family and professional.
This meeting served not only as an opportunity to learn more about how other organizations are supporting caregivers, but to also share pertinent information on LBD and highlight LBDA programs and family services.
I was informed by RCI that Former First Lady, Rosalynn Carter, attends this particular meeting but because of her very tight schedule, doesn’t usually stay all day. Much to my surprise after my presentation, Mrs. Carter was still in attendance and had many questions. She was very appreciative of the information as she indicated never having heard of LBD.
The LBD community is well aware of the many challenges that can arise from caring for someone living with dementia. Though CARE-NET’s approach to caregiver support is a local model, I am encouraged that some of their best practice strategies can be applied by LBDA through volunteer efforts nationwide. To learn more about the CARE-NET Coalition, click here. For more information on outreach event presentations, please contact Diedrea White, Marketing and Communications Manager.
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LBD support groups provide free, confidential support in a group setting to anyone affected by LBD. The support groups in our network are facilitated by trained volunteers and welcome those living with LBD and those who care for them. DID YOU KNOW…there are 16 states and the District of Columbia without at least one support group? Are you interested in decreasing this number and support more LBD families? To learn more about becoming a Support Group Facilitator, contact Latoysa Scaife-Rooks, Volunteer and Family Services Coordinator at email@example.com.