Federal Government

National Institute on Aging
Alzheimer’s Disease Education and Referral (ADEAR) Center
1-800-438-4380 (toll-free)
National Institute of Neurological Disorders and Stroke
1-800-352-9424 (toll-free)
National Library of Medicine

General Information

Lewy Body Dementia Association
1-800-539-9767 (toll-free Lewy Line)
1-404-935-6444 (national office)
Michael J. Fox Foundation for Parkinson’s Research
1-800-708-7644 (toll-free)
Parkinson’s Disease Foundation
1-800-457-6676 (toll-free helpline)

Support Services and Resources

Eldercare Locator This service of the U.S. Administration on Aging connects the public to community services for older adults and their families.
1-800-677-1116 (toll-free)
Family Caregiver Alliance The Alliance provides information and referral, education, and other services to caregivers of people with chronic, disabling health conditions.
1-800-445-8106 (toll-free)

For Children and Teens

Although the following Alzheimer’s organizations are not specific to Lewy body dementia, their dementia-related resources and networks may be helpful for children and teens.
ADEAR Center Resources for Children and Teens
Alzheimer’s Association Kids & Teens
1-800-272-3900 (toll-free)
Alzheimer’s Foundation of America (AFA) Teens
1-866-232-8484 (toll-free)

Diagnosis, Treatment, and Research

The Lewy Body Dementia Association (LBDA) maintains a list of its scientific and medical advisors. Many of these physicians see patients at their clinics or may make referrals to other specialists in your area. See For general tips on finding a doctor, visit
The Alzheimer’s Disease Education and Referral Center maintains a list of research centers funded by the National Institute on Aging at NIH where you may find medical specialists in Lewy body dementia:
The American Association for Geriatric Psychiatry has a physician finder on its website: