Stories – Page 9 – Lewy Body Dementia Association

Loss of my Rock

I lost my rock of 50 years on 9/27/14 to respiratory arrest caused by Lewy body dementia. My Marie and I had a beautiful life until Mr. Lewy decided to […]

The Wedding Day that Almost Wasn’t

I got a call from my mom one month before my wedding, “Your dad fell and he can’t walk.” She reluctantly had to put him in a nursing home for […]

daughter with question

I have a 79 year old mother who has been going through visual hallucinations for 2.5 years, and we do not know what to do. I would like to share […]

My Beautiful Mom

I lost my mom and best friend on July 21,2014. She had struggled with Lewy Body for 5 horrible years. At first they said Parkinson’s, then Alzheimer’s, then dementia,who knows […]

What LBD Can’t Do!

Calvin and I would have celebrated our golden anniversary this past December third. In 1964. we were waiting for my eighteenth birthday. I was 18 and he was 20 when […]

The End of the Journey

My dear husband has been gone since December 8th. I have struggled to write this. Started and stopped. Wondered exactly what to say….it is profoundly difficult for me to put […]

It looks pretty, too.

I awoke in the middle of the night to my Mom talking loudly. When I arrived at my Mom’s bedside, she smiled sweetly at me and whispered, “Hi.” She was […]

A Noble Soul

My best friend and husband John Greges died on September 3rd 2012. He was 73 and had suffered from many ailments and then for a lot of years Lewy Body […]

My experience with LBD

A terrible disease that rips away a persons dignity and independence. My father passed away on 7/15/14 from end stage lung cancer, but was in the hospital in the week […]

Today

My Dad was diagnosed with LBD in 2013. I had suspected he had dementia many years prior as his reasoning abilities seemed to diminish and he grew increasingly paranoid and […]

My father and his LBD journey

My father passed away May 29th, 2014 from LBD. He was diagnosed approximately 5 to 6 years prior. But he showed symptoms for 4 to 5 years before that. my […]

It is well with my soul

On a sunny day, five years ago, Jude crawled around with Buddy, on the kitchen floor. As Jude woofed and crawled while Buddy skidded on the vinyl around and around […]

LBD and my experience

My father passed away May 29th, 2014. He was diagnosed with LBD after a incorrect diagnosis of Alzheimer’s. Form the onset of symptoms to his death was about 12 to […]

What a Journey

Hello, ,My name is Don and I care for my wife of 49 years Irene (Marie). Marie was first diagnosed with Parkinson’s in 2004. Then in 2008 they changed it […]

A hard Beginning of My Life

February 2009 My father has been diagnosed with Parkinson’s disease. My mom was telling me about all the symptoms of it and what it will cause in the future. I […]

Gramma Evelyn

My mother, Evelyn, was recently diagnosed with Lewy body dementia. She had always been a very independent lady and lived by herself ever since I was married in 1988. She […]

How Is Patrick?

One of the things that attracted me to Patrick Dougherty all those years ago was that he always treated me as an equal. He would engage me in conversation and […]

My husband of 34 years

My husband of 34 years is suffering from LBD. This was a man who had always been strong, hearty, active. He worked from the time he was a poor kid […]

May 2013

Please hurry the research to help people with this disease! My husband, Robert, cannot get up out of a chair by himself but when helped up he can walk. The […]

A Disease Masked by Many Different Symptoms

July 21, 2013, I lost the love of my life. He was only 59. We have been together for 10 years and married for the last 5. When we met […]