Stories – Page 5 – Lewy Body Dementia Association

What could we have done?

My Mom passed away from Lewy body dementia last week. We found it challenging to learn about the disease. In particular what was the best treatment to help her make […]

Natanya’s memory

Today would have been my grandma's 87th birthday. Gardenia buds all over the east coast, tight in their glossy green cocoons, tell that it's that time of year again. Soon […]

LBD

LBD is hell. My mother, Joyce, was misdiagnosed with Parkinson’s disease in 2009. Several months later she was admitted to a mental hospital. She was accused of faking her symptoms, […]

Early Onset LBD

My husband, Ken, was diagnosed with Lewy body dementia four years ago. He was highly educated and 60 years old. We had been together for over 10 years, having met […]

Lewy Body Dementia: The Artist Within

Sometimes the most fascinating people in the world to listen to are the ones who struggle to speak at all, whose body is crumbling, cheating itself of its once natural […]

My Mom, LBD and Tamiflu.

My Mom is 93 years old, was diagnosed with LBD 3 1/2 years ago by her geriatric physician. On 3/18/17, the nursing home where my Mom resides started giving Tamiflu […]

Mother’s Poem

Watched you fall a part each night Cried because I needed you back The voices would not leave you alone Body shook as disease slowly attacked Lewy lean weighted down […]

3 things I learned about me and my Lewy body dementia on my European vacation

My recent ‘bucket list’ trip to Europe, a quest planned by my three daughters after my diagnosis late last year of Lewy body dementia, brought with it three revelations about […]

My Dad

Hello, My 81 years old (and 11 months) dad lost his battle with LBD on 2/28/17. We all know what a horrific disease it is and what it can do. […]

Colleen’s Story

I am a single 55 year young lady who loves life, and this is my story: I was diagnosed with LBD September 2014, after being diagnosed with MCI (mild cognitive […]

A Mother’s Day Note

Dear Mom, I write this as my first year at Boston University nears the end. It was an accomplishment made possible through your support, understanding during my uncertainty, […]

LBD Was His Kryptonite

Death does not sound a trumpet. – African proverb There were no trumpets, or any heralding anything. Just quiet, and then he was gone. He slept all day yesterday, occasionally […]

Father and Son

Hi my name is Ron Hansen and I am 53 and married to Lynda, dad to Katharine (Kate) and Sarah and son to Gary and Beverly Hansen. As a native […]

Brenda’s Story

My mother is the most amazing mother anyone could ask for. One characteristic that really stood out about my mom was her artistic side. She could draw anything that […]

Swanny’s life story

Evelyn Swanhild Halvorsen was born in Brooklyn, NY in 1936. “Made in America with 100% Norwegian parts” is what she would say. Her parents were Norwegian immigrants…her father a ship builder, […]

Aging with Dignity with LBD

In my case, I intervened in my mother, Linda's life 14 years ago, because "something was just not right." She stopped eating right, her house was a mess, she was […]

My story with Mom

My mom was diagnosed in 2012. She is currently in a nursing home in the late stages, I believe. She has not been out of bed since 4/29/17. She needs […]

Jim

=I tripped over the LBDA website while Googling my Jim's diverse and unusual symptoms and realized he has EVERY single symptom listed of LBD. His hallucinations, delusions, suspicion, and utter […]

Lewy. Mom, and Me

My mother lived with me so I saw her struggle with Lewy body dementia long before we finally got a diagnosis. The hallucinations, the stories, the frozen stance, cognitive issues, […]

When I look back, my mother Dorene showed symptoms of Lewy body many years before I realized that something was very wrong. Through the years she was diagnosed with vascular dementia, Alzheimer's, […]