Stories – Page 4 – Lewy Body Dementia Association

From Dancing to Disaster

My mom probably has Lewy Body Dementia. She was diagnosed with Parkinson’s Disease but has symptoms more in line with Lewy Body. My mom often shakes when getting up to […]

My Dad

My Dad Susie Flower March 15, 2018 My dad is 75 years old and has been having active dreams and talking in his sleep for about 12 years now. He […]

Registered Nurse and caregiver for 48 residents and families.

I have care for residents and their families for the last 18 years. I am the one who follows the resident to the Emergency Room. Through the years I have […]

Daughter

My father was a victim of LBD. I wrote this after a visit with him. A VISIT WITH DAD I’ve come to visit dad. He sits there in his chair. […]

A Visit With Dad

My father was a victim of LBD. I wrote this after a visit with him. A VISIT WITH DAD I’ve come to visit dad. He sits there in his chair. […]

Goodbye to My Steam Man

Lewy Body Dementia (LBD) takes prisoners, and it does not discriminate. When LBD targets someone, there isn't a cure and no escape—it’s a one-way journey with a guaranteed rough ride […]

Caregiver sister

My story is about my brother-in-law and he was first diagnosed with Parkinson’s. In December of 2017, an intern gave him an antihistamine and steroid shot and after that he […]

The Builder

The Builder I was the one with pen in hand, building imaginary worlds with words. But my dad held the tools that built my life. He constructed the foundation for […]

The wife

I am going through this now with my husband. I kind of expected withdrawal and memory loss. But I didn’t expect so many roller coaster rides. The ups and down […]

Miss

Attatched is a poem I wrote for Mum who died from dementia with Lewy bodies.

My Twin

I have not lived around my twin sister for a few years. She lived with me in 2014 after her divorce. She had a back injury and was heavily medicated […]

Coping with Pain Through Writing

The Father Forget not that the Earth likes to feel your bare feet and the winds long to play with your hair. He is standing alone in the middle of […]

Mrs.

Happy birthday, Daddy. When I look at this photo, I see my own son – the wondrous and precocious child who makes everyone laugh with anecdotes and proverbial dad jokes. […]

My mother, Alice, was originally diagnosed with Alzheimer’s around 2001, but had adverse reactions to the medication prescribed by her doctor. After several setbacks that required additional care in order […]

Spreading Dementia Awarness

Our Family’s Journey with LBD

I can't remember the point we realized that something was amiss with Mum; I just recall it seemed to happen quickly. She was eventually diagnosed with dementia with Lewy bodies […]

Blame it on Lewy?

I wrote this story for my father and for all those who are sadly misdiagnosed. I lost my father to something horrible that changed him from a strong, brilliant, handsome […]

The Trial of My Life

For whatever reason, Lewy body dementia (LBD) clinical trials on new medications are rare. Those of us in the early stages need to embrace the opportunity to participate in trials […]

Caregiving for My Wife

My wife Maria recently passed away on January 8th, 2017. It began in 2007 after I noticed she was having trouble walking. She had suffered a stroke in May 2004 but […]

Blame it on Lewy?

Strong, brilliant and handsome is how I would have described my father. As a young man, he was a competition weight lifter, winning numerous awards and titles. He became a […]