Stories – Page 10 – Lewy Body Dementia Association

father with LBD

My father (67yo) has recently been diagnosed with LBD – well the specialist keeps talking about LBD, although we initially thought it was parkinsons. But the symptoms match what others […]

Never Give Up: My father’s legacy

A little over a month ago, my parents picked up and moved down to Florida. It happened very fast and was decidedly the best decision for everyone. It has allowed […]

Single mother of 3

My husband Phil and I have been married for 15 years. We met and started our family later in life than most. He is now 51 years old and our […]

Why we have to be educated

Three weeks ago my husband had an episode (like a seizure but we’re not sure yet) and the doctor who saw him (at a major teaching hospital) did not know […]

Gone a Year, Not Forgotten

It’s a year ago next week my dear husband Ben passed away after four years with LBD. I knew something was terribly wrong when I found him at the back […]

My husband is at rest now

I met my husband about 10 years ago. We got married in 2006 and then in 2009 we found out he had Lewy body… We just lost him on Aug […]

Trying to Remember Our Lives Before Lewy Body

Sept. marked one year since my husband of 26 years Mike passed away from Lewy Body Dementia. The previous three years were the hardest of my life. Mike’s symptoms really […]

The Journey

To all those who stories I have read today my heart goes out to you and your love one. Even twenty months later it is still difficult to review our […]

A Fast Onset LBD Journey: He Is Still In There

Dad started working when he was 10. You see, many little boys. born in the Great Depression and growing up though the WWII years started looking for their first pennies […]

Maxine – an acrostic poem

Maxine L osing you to this disease is beyond painful and paralyzing E ach day wondering what will be… W aking up with angst and longing to have real conversation […]

He Always Knows

Funny, smart, caring not a mean bone in his body. We are a blended marriage; now married for 17 years. John is very generous and I, being independent felt a […]

Caregiver

My husband, George, passed away on Nov. 22, 2013 from LBD. He had been diagnosed with Parkinson’s Disease in Nov., 2005. From the beginning he had experienced dreams in which […]

My Dad My Hero

I lost my Dad June 28th this year. He was 62 years old and supposed to walk me down the aisle this year. As I plan my wedding I can […]

Dreaming of Mom

My mother began to lose the core of herself during the last year of her life. I noticed this when she stopped reading, couldn’t write her Haiku anymore, couldn’t balance […]

Whom Do I Ask Now?

A number of years ago, a close friend of ours called to let us know that his daughter-in-law had died of breast cancer. His son was left with two young […]

For Better, For Worse

When Ted came home from his brother-in-law’s funeral several years ago, he told me that he wanted us to leave for Europe as soon as possible. His sister’s husband was […]

Letting My Mother Die

My mother died in 1999, two days shy of her 66th birthday, after suffering for about 10 years with LBD. Of course, we didn’t know it was LBD until very […]

The dog was a Capgras* victim!!

Oh! The light has shed! Early on in the journey, my mother had frantically called me from her condo to tell me that the groomer picked up Sophie and never […]

For Love of the Game

My mother and I walked down the halls of the assisted living home. She turns to me and mustered up the words any five year old would, “What time is […]

He taught me all he knew because…

Dad called me one day to help him put the bag on the lawnmower. He said he taught me all he knew so I could reteach him when he got […]