VOCALE LBD+: Virtual Online Communities for Aging Life Experiences – Lewy Body Dementia

What is this study about?

VOCALE LBD+ is an 8-week online support program for caregivers of people with Lewy Body Dementia. The program takes place on a private online discussion board, and weekly discussions are meant to enhance caregiver mastery and problem-solving skills related to caregiving.

What’s involved?

By participating in this study, you can contribute to research and development of support resources for caregivers like you. You’ll join an 8-week online support program and be asked to post twice a week on the discussion board. You will respond to weekly topics and prompts specific to caregiving for people with LBD and interact with fellow caregivers by replying to posts. Before the study starts, there is one required, 1:1 training and enrollment session on Zoom. At this session, you will complete baseline questionnaires and learn to use the online discussion board. After the study is over, you will be asked to attend two 1:1 follow-up sessions, during which you will complete another set of questionnaires and participate in exit interviews. All study activity is done remotely, and there are no in-person activities/components.
You can earn up to $250 for participating.

Who can participate?

An individual may be able to take part in the study if he/she meets the following qualifications:

  • Men or women who are 18 years or older
  • People who:
    • Are an informal and/or lay caregiver of a person with a diagnosis of LBD,
    • Can read, write, and speak English,
    • Have a device that can access the Internet and be used for videoconferencing and/or phone calls

Study Sites:

All aspects of the study are completed virtually (online)

Contact person:
Jasmine Kaneshiro, Study coordinator

Study Sponsor:

NIH Funded