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 Hello 
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Joined: Sun Jul 16, 2017 4:00 pm
Posts: 1
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Post Hello
Hi, I'm Maureen, and I live in Wiltshire in the U.K., not very far from Bath and Bristol.
My husband was diagnosed with LBD with Parknsonisms nearly 2 years ago, but his decline has been rapid.
He is unable to stand or walk, and can only sit in a chair with arms.
He has very poor muscle tone, unable to support himself.
He has very poor short term memory, and even his mid term memory is starting to fail.
He uses bad language, swears at his carers, and asks personal intimate questions of them, their favourite word when caring for him is 'inappropriate'
He eats and drinks very little, the only meal he really seems to enjoy is breakfast.
We are seeng his neurologist tomorrow, and I have a long list of questions for him.

This is an awful disease, I have lost my best friend, this horrible disease has completely changed the man I have been with for 50 years.


Sun Jul 16, 2017 4:14 pm
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Joined: Tue Jun 06, 2017 5:10 pm
Posts: 9
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Post Re: Hello
so,,, how did your neuro visit go? We do not have a diagnosis yet but believe my husb is hosting lewy bodies. Our 1st neuro appt is tomorrow.....


Tue Jul 18, 2017 5:47 pm
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Joined: Tue Jun 06, 2017 5:10 pm
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Post Re: Hello
looking back, how long did your husband show symptoms before he was diagnosed?


Tue Jul 18, 2017 5:50 pm
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Joined: Fri Aug 04, 2017 6:54 am
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Post Re: Hello
Then, in May, DH contracted Influenza-B and the whole delusion, illusion, hallucination routine started again.


บาคาร่า


Sat Aug 05, 2017 3:47 am
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