Lewy Body Dementia Association, Inc.
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HELLO ALL - I need support dealing w/my mom's new dx of LBD
https://www.lbda.org/phpBB3/viewtopic.php?f=96&t=4432
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Author:  ALE11NOV [ Thu Jul 13, 2017 12:08 am ]
Post subject:  HELLO ALL - I need support dealing w/my mom's new dx of LBD

She is 75 and it was not until today, after a visit to a neuropsychologist that the most important piece of the puzzle appeared to be found. I have taken my mom to a bunch of specialists and numerous hospitalizations w/no formal identification of a cause of her trouble. I'm so new w/all of this and would appreciate any guidance as to how to help her out....any suggestion will be appreciated.
Thanks,

Author:  Habesgirl [ Thu Jul 13, 2017 12:48 am ]
Post subject:  Re: HELLO ALL - I need support dealing w/my mom's new dx of

Hi,
Im new also. My dad (82) recently diag. with lbd and parkinsons. This past year has been a nightmare for me. He lives 1 hr and a half away and ive had to travel back and forth. Have they prescribed meds for your mom? Levodopa? Can she still walk? Think?

Author:  Michdaughter [ Tue Jul 25, 2017 10:49 pm ]
Post subject:  Re: HELLO ALL - I need support dealing w/my mom's new dx of

My father had LBD for almost 5 years. Seroquel was very good when it came to stopping his delusions. Aricept also seemed to help. He was mentally with us until almost the very end, and even then he knew who we were, just not sure about time -- he knew we were his kids but he thought we should've been coming home at night (of course we are all in our 40s and 50s). What took him in the end was the physical things - LBD took away his ability to walk and then his ability to swallow. Advice is hard to give, it is a tough road, no doubt about it. My mother was his primary caretaker and we included him in everything to get him out of the house and keep him involved -- took him to restaurants or had him to dinner, gave her breaks and took him to sporting events, took him shopping, that sort of thing. Once he was placed on hospice and could no longer dress himself and became incontinent my mother brought in 24 hour care. It was not cheap but it was worth it, after 3 1/2 months of that, he passed away at home surrounded by family.

Author:  harada57 [ Sat Aug 05, 2017 3:41 am ]
Post subject:  Re: HELLO ALL - I need support dealing w/my mom's new dx of

I'm not able to help, but there are some really informed folks on the forum.

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