Lewy Body Dementia Association, Inc.

Privacy and Security for the LBDA Forums
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Author:  irene selak [ Tue Oct 11, 2011 11:25 am ]
Post subject:  Privacy and Security for the LBDA Forums

Privacy and Security
LBDA is committed to protecting the privacy and personal information of individuals who contact the Association. Information collected by LBDA is for the sole purpose of furthering the Association's mission, and will not be sold, rented or traded. The only personal information collected by the LBDA is that which is freely provided by contact through phone calls, mail, donations or our website. Personal information is stored in a secure environment and access only by authorized personnel with a legitimate and specific business purpose. By providing information, you consent to the collection, and understand that it may be used by Association to make further contact. To opt out of any or all methods of contact, follow the instructions on literature, if provided, or notify us by email (see below, by telephone or letter (see phone and address information below). Please note that discussions on group message boards are public information, and not protected under the privacy policies.

Section 5. User Submissions

a) If you submit an article or other form of information, including postings to a listserv, message board, or web log, (“Submission”) on this Web Site you do so with the understanding that the Submission is not confidential. By posting Submissions on the Web Site you automatically grant the LBDA a royalty-free, perpetual, irrevocable non-exclusive license to use, reproduce, modify, publish, edit, translate, distribute, perform, and display the Submission alone or as part of other works in any form, media, technology whether now known or later developed, and to sublicense such rights to sublicenses.

b) When you submit information, your are responsible for the consequences of its posting. When posting an article or other form of information you agree not to do the following things:

• Post material that is copyrighted, unless you are the copyright owner or have the permission of the copyright owner;

• Post material that reveals trade secrets, unless you own them or have the permission of the owner;

• Post materials that infringes on any intellectual property rights of others or on the privacy or publicity rights of others;

• Post material that is obscene, defamatory, threatening, harassing, abusive, hateful, or embarrassing to another user of the Web Site or any person or entity;

• Post a sexually explicit image;

• Post advertisements or solicitations of business;

• Post chain letters or pyramid schemes;

• Impersonate another person, or

• Take any action that might interfere with the functionality of this Web Site or the materials contained on the Web Site.

c) LBDA does not screen Submissions of material in advance and is not responsible for screening or monitoring any Material posted by Web Site users. If it comes to the attention of LBDA that there may be Material that does not conform to these Terms and Conditions, LBDA may investigate the situation and determine in good faith, and in its sole discretion, whether to remove or request removal of the Submission. LBDA has no liability or responsibility to Web Site users for performance or nonperformance of such activities. LBDA reserves the right to expel users and prevent their further access to the SITE for violating these Terms and Conditions or the law and the right to remove Material that is abusive, illegal, or disruptive.

The Forums are generally public in that all individuals seeking information regarding LBD and support can access the posts within the Forums to read and review the comments shared.

If an individual wants to comment, reply or post information within the Forums they must join the Forums to do so.

The Forums are not confidential nor does LBDA policy state that confidentiality or privacy is guaranteed.

Even on non-LBDA sites where the Forum is closed to all non-registrants there is generally not a guarantee of privacy or confidentiality since individuals within the Forum could export individual postings to external sites.

In all cases we anticipate that individuals will be respectful of each other’s postings and not republishing details, identifying information, names, or any identifying information related to personal accounts, stories or comments shared.

LBDA does screen out requests received from individuals requesting to join the Forms who identify themselves as advertisers, authors, pharmaceutical companies or those selling products or services.

In the event that someone’s intent to join the Forum is not immediately know but the Forum Administrator becomes aware that the Forum member is using the Forums to market, sell, solicit or in any manner misrepresents themselves, they will be banned from the Forums.

In the event that someone tries to publish or export postings, comments or stories from the Forum site, the Forum Administrator will follow-up with that individual to review their intent and remind the individual that they are to respect those individual postings by not sharing or publishing identifying, personal or individual postings or information in any form without the written permission of the individual is question.

Author:  JeanneG [ Tue Oct 11, 2011 11:34 am ]
Post subject:  Re: Privacy and Security for the LBDA Forums

Thank you.

Author:  robin [ Tue Oct 11, 2011 12:37 pm ]
Post subject:  Re: Privacy and Security for the LBDA Forums

Is this the first time this information is being posted? It should be added to the FAQ.

Author:  cdw [ Tue Oct 11, 2011 12:46 pm ]
Post subject:  Re: Privacy and Security for the LBDA Forums

thanks irene, for clearing this up and all your hard work!! ((()))

Author:  LTCVT [ Tue Oct 11, 2011 2:58 pm ]
Post subject:  Re: Privacy and Security for the LBDA Forums

Thanks Irene, and BTW, someone may want to edit this:

"Please note that discussions on group message boards are pubic information",

I believe "pubic" should be corrected to "public"! Lynn

Author:  irene selak [ Tue Oct 11, 2011 3:28 pm ]
Post subject:  Re: Privacy and Security for the LBDA Forums

Good catch Lynn, Thanks !

Author:  irene selak [ Tue Oct 11, 2011 4:20 pm ]
Post subject:  Re: Privacy and Security for the LBDA Forums

Yes this is the first time and I think this is the place for it as current members have seen it if they were keeping up with topic but I think it works better here for our newcomers!

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