Predicting ACcurately End-of-Life in Dementia with Lewy Bodies and Promoting Quality End-of-Life Experiences (PACE-DLB)

This study will explore disease progression and care needs for persons with advanced dementia with Lewy bodies (DLB). This will include assessment of medication prescribing practices, exploring predictors for end of life, and identifying opportunities to improve care and quality of life for the person with DLB and the caregiver.

No in-person visits are needed for this study. Study participants will attend phone or virtual study visits every 6 months for up to 3 years.

The primary caregiver and the person with DLB will be enrolled as pairs. Criteria for enrollment includes:

  • The person with DLB must have moderate to advanced dementia and can live at home or in a facility. They cannot be receiving care at an LBDA Research Center of Excellence and should be expected to live at least 6 months or longer.
  • The primary caregiver must be providing most of the care (or is very involved in the care of a person with DLB who lives in a facility).

To learn more, please contact:

PACE-DLB Study Staff
Kaitlin Sovich, Study Coordinator, at (352) 733-3004