Raise Awareness, Have Fun


Raising awareness is something each of us can do every day. We can share an Lewy body dementia brochure with a friend or a physician. We can explain LBD symptoms to a neighbor at the grocery store. We can join with other family members to hold a special event in honor of our loved one. Three families in Louisiana, Tennessee, and Wisconsin joined friends and neighbors to increase LBD awareness in more than 700 people and raised more than $10,000 in support of LBDA’s mission in just three months.

In April and May 2009, Adrianne and Paul Jouet ran, biked, and swam a combined 99.07 miles in the Ironman 70.3 triathlon, the Crescent City Classic, and the Crawfish Triathlon in New Orleans, La. The couple dedicated their efforts in honor of Adrianne’s mother, Cathy, who has Lewy body dementia. Through their efforts, Adrianne and Paul have shared information on LBD with more than 200 people and raised $5,500 in support of the cause.

During the same time, sisters Kelly Tillman, Mindy Gannon and Jenny Greenwell participated in the Country Music Marathon & Half Marathon in Nashville, Tenn., on April 25. The sisters ran in the marathon in memory of their father, John Michael Gannon, who had LBD. More than 100 family members and friends joined with them in honoring and remembering their father. The family raised $5,200 to benefit LBDA’s programs and services which help thousands of families each year.

On April 26, 2009, Pamela Crapp joined with friends and neighbors at the Parkinson’s Disease Walk-a-Thon in Madison, Wi., to help raise awareness of Lewy body dementias. More than 400 people in the Madison area were in attendance at the Walk-a-Thon. Pamela continues her efforts in her hometown by networking with local organizations, sharing LBD publications at the doctor’s office along with other places she visits each day, and by reaching out to other families and caregivers in need of support and information.

Our deepest thanks and appreciation go out to Adrianne and Paul Joet, Kelly Tillman, Mindy Gannon, and Jenny Greenwell for their incredible dedication which brought awareness to more than 300 people and raised more than $10,000 to benefit LBDA. The funds that they raised are enough to provide 1,000 families with vital information on Lewy body dementias. Thank you for your generosity and devotion in the fight against LBD! We also extend our thanks to Pamela Crapp for being a constant advocate and source of support for more than 400 families in her community. Please join with us in thanking these families for their efforts to raise LBD awareness and support at home.

YOU can begin making a difference today. Call or email us right now to learn how you can begin raising awareness in your hometown. With just a few minutes of your time each week, your efforts can help change the future for every LBD family. Call the LBDA office at 404-935-6444, extension 100, or e-mail us at