Nearly 1,000 caregivers responded to our LBD Caregiver Burden Assessment Survey last year, and members of LBDA’s Scientific Advisory Council have begun delivering that data to the medical community.
James E. Galvin, MD, MPH, John E. Duda, MD, Daniel Kaufer, MD, Carol F. Lippa, MD, Steven H. Zarit, PhD, and the Lewy Body Dementia Association have submitted abstracts on the survey to several major national and international conferences. In October of 2008, Dr. John Duda gave a presentation on LBDA’s behalf at the 6th International Congress on Mental Dysfunctions & Other Non-Motor Features in Parkinson’s Disease, in Dresden Germany, to neurologists, psychiatrists, geriatricians, neuropsychologists, and scientists.
LBDA will be publishing a report on our the LBD Caregiver Burden Assessment Survey later this year. Look for updates on the availability of the report in future issues of the Lewy Body Digest.