Essays on LBD Caregiving

LBD invites you to submit a personal LBD story for possible inclusion in our web site, newsletter or other publications. Click here if you would like to submit a personal story today!

One of the many difficulties associated with caregiving is that you will tend to disappear. The person you are caring for may be belligerent, ungrateful, treat you as though you were still the child. Deep down you know that they have no malicious intent. 

Streams of light penetrate the fog at yet higher angles, shifting the picture as if to announce new possibilities. Nothing stays the same it tells me.

Gradually I have come to realize that my heart will always say “no,” and it is time to listen to the voice in my head that is saying, “I can’t do this anymore.”

I want to snip away the indignant threads that wrap around my insides so that I too can be free.

As the caregiver, I had to start over by redefining who I was in the marriage relationship. The progressive dementia meant that this process would be one-sided, would constantly be shifting, and would always move toward greater loss.

The discovery of biomarkers is crucial to the effective diagnosis and treatment of Lewy body dementia. Researchers are making exciting progress in identifying early warning signs of the disease.

A volunteer is called to advocate for Lewy body dementia 10 years after losing his mother to the disease.

The challenge of any marriage is to grow together, not apart. Lewy body dementia changes the dynamic of that challenge, but does not eliminate it.