May 2016 Newsletter


Treating Psychosis in Parkinson’s Disease – Out with the Old, In with the New?

The use of antipsychotic medications in Lewy body dementias is a known challenge. Are the medications helpful and safe? A recent Parkinson’s disease study suggests there is reason for concern. However, new hope is on the horizon with the FDA’s approval of a new treatment for hallucinations in Parkinson’s disease.Read more.

LBD Advocates Weigh in on National Strategy

Together with representatives from LBDA, members of the LBD community attended a research summit at the National Institutes of Health (NIH) to listen to the progress made in LBD and provide input to newly updated recommendations on LBD research priorities. Read more.

Lewy Body Dementia Association Addresses the need for a Common Language on Dementia

Angela Taylor, Director of Programs for The Lewy Body Dementia Association(LBDA) recently addressed attendees at the National Institutes of Health’s 2016 Alzheimer’s Disease-Related Dementia (ADRD) Summit on the need for an open national dialog on changing the nomenclature frequently used to describe different forms of dementia. Watch Angela Taylor's March 29th address on LBDAtv. Read the full press release here.

Book Excerpt: Mindfulness for Caregivers

Mindfulness is a practice that has long been used in cognitive-behavioral therapy to reduce stress, a problem very common in dementia caregiving. Read an excerpt .

LBD Story: A poem by Alexander Dreier

Alexander Dreier is a poet, comedian, published author, and also a person who happens to be living with Lewy body dementia (LBD). His new book, The Brain is a Boundary, is “a journey in poems to the borderlines of LBD.” Read his poem.

Tell Us Your Story

We want to hear from you and share your story. We are looking for essays on caregiving or living with LBD. Submit a personal LBD story for possible inclusion in our website, newsletter or other publications, and know that you are not alone! Submit your story here.

Host a Little Black Dress Dinner Party

Dress up, so we can take Lewy down! Host a Little Black Dress fundraising event and help us beat Lewy! Most ladies have in their closet at least one little black dress that’s become a wardrobe staple. “LBD” is an acronym for that indispensable garment, as well as the illness Lewy Body Dementia. We need your help in to make the disease as well known as the dress. To become a host for this event, sign up here!