Stories – Page 3 – Lewy Body Dementia Association

2018 Art Show and LBDA Fundraiser, in the history books!

Recently my family hosted an art show/fundraiser with my LBD husband’s oil paintings, prints, and notecards; all on display, and for sale at a local gallery. This was our second […]

Managing LBD Care – By a Family Caregiver

I wrote “Aging with Dignity” 1 year 2 months ago, based on my experience as a Family Caregiver for Linda H, who lives on her own with LBD. In the […]

Ms

My Mom was taken so quickly and my Dad committed suicide 7 months before she passed away on his birthday. She was in long term care and we never knew […]

My Mother’s Story

My kind and loving mother was diagnosed with Alzheimer’s when it became obvious that her memory was impaired. She was put on drugs to treat Alzheimer’s, which did nothing to […]

Brother with special needs and LBD

My brother is now 68. When he was 3, he hit his head on the coffee table and due to lack of oxygen, caused trauma to his brain and became […]

Medical Assistant

I was best friends with my grandma. As a child, I spent most of my time with her since she watched me after school until my parents got out of […]

Lewy Body Dementie

Mijn partner heeft de diagnose LBD gehad enkele maanden geleden en dit n.a.v. het volgende voortraject. Hij heeft al sinds 1994 een slaap-apneu syndroom met , zoals we pas sinds […]

The Trials and Tribulations of LBD

Vickie met her husband, Paul, the first day of college in 1972. A woman was playing the piano in the campus cafeteria. Vickie caught Paul’s eye and he approached her […]

A Year Ago: When Was That?

A year ago, I posted “What About Us,” or something similar name. Me, I have Lewy inside of my head and all parts of my body. I posted here because […]

LBD Caregiver vs. Advocate, Which are You?

Imagine, you are in a plane at 10,000 feet riding comfortably, without a care. Then, the pilot dons a parachute and jumps out. Now, what do you do? Believe it […]

Down the rabbit hole

My mom was my best friend. I was the only girl in a family of six kids, so we were very close. She would come out to visit me from […]

New LBD BLOG

Hi- I am a caregiver to my 59 year old husband, dx with LBD in 2015. I started a new blog to be able to share some of the stories […]

10 things I wish I had known sooner

Our Mum died from dementia with Lewy bodies. Caring for someone with dementia can be frustrating, stressful and completely overwhelming and the following are the 10 things that I learnt […]

James Wood

Hello, My dad has been living with Lewy Body Dementia for over 10 years now. At this point, he can no longer walk, bathe, or feed himself without assistance. Once […]

LBD Takes on Ironman

Lisa is passionate about health and fitness and has always participated in marathons. She was inspired by her father's LBD diagnosis to take her passion to the next level by […]

Marvis, Lewy and Me

Here is my blog I started the first of the year. It has been a tough journey. I hope my stories can help you, inspire you and give you understanding […]

Celebrating Love

Recently our church family celebrated Valentine’s Day with a lovely dinner out in the elegant surroundings of a charming Italian restaurant. We have enjoyed this dinner with friends, old and […]

My Mom

My mom was courageous and kept her sense of humor as best she could. She has been gone for three years now. She passed about three weeks before Robin Williams […]

Our Mom Gloria

My Mom Gloria. What a wonderful caring, soul she was. My mom was born in Vancouver, Canada January 11, 1932. Mother of four children. Marianna, Dan, Cathie and me Lisa. […]