My Dad – Herb

Dad was such fun, even the Lewy Body dementia didn’t take that sparkle from his eye right up until near the end. He passed away January 10, 2011. It was […]
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Most Amazing, Wife, Mom, Grandma

Grandma’s Last Fight A face that is always on my mind, A smile I have seen a million times, Two eyes that would light up the sky at night, Until […]
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Lewy Body Unknown for Years

Lewy Body Unknown for Years Our father had Lewy Body Dementia for at least 6 years without us realizing what was wrong. We thought his symptoms were just from normal […]
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Take 2

We moved in with my grandma two weeks before my seventeenth birthday. My mom was determined to take care of her and keep her out of a nursing home. At […]
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An epiphany

We just returned from the Cleveland Clinic. My husband’s meds weren’t changed, which is a good thing. Anytime they don’t need to increase anything, I always figure that’s good. While […]
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Making a Difference

In 2008, my husband suspected memory loss. I took care of him until a doctor insisted he take risperidone. Two days later he collapsed and went to hospital. That was […]
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Racing Toward a Miracle

Racing Toward a Miracle I look for a lost piece of paper in my messy den, Happen across an envelope of pictures, A hiking trip to Banff five years previous, […]
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undetected causes

A note from LBDA: One caregiving topic that isn’t addressed often in LBD is quality oral care. Infections and pain can worsen behavioral problems, so good dental hygiene and care […]
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Daughter/Caregiver

My dad was diagnosed with LBD several years ago. It’s hard to see a once strong, independent, vibrant man slowly deteriorate He’s not used to family, friends, and caregivers to […]
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The Lewy Body Roller Coaster

My mother – J.E.T – was originally diagnosed with Frontal-temporal Dementia in early 2011, but she has since been diagnosed with Lewy body dementia. However, I have used the word […]
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