When did it all start?

I still look back to try and figure out a timeframe of the progression and why I wasn’t able to see something was wrong sooner. In November of 2007, Frank […]
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When Did This All Happen?

I sit and think, “How did we get here?”…. I’m 21 now, my dad, 79 was diagnosed with LBD about 8 years ago. It started off with missing a step […]
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When the Unthinkable Happens

This past spring  Art’s CNA caregiver , our friend Doreen, took a two week trip to Jamaica. Doreen had gently and reassuringly gained Art’s trust as  his caregiver during my […]
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Where Did He Go?

My father passed away on Dec. 6, 2014, of sepsis that we didn’t know was happening – because he never complained. We first noticed signs that seemed to veer away […]
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Who is Bill?

Who is Bill? There were many times during the last year of Bill’s life that I asked myself that question. The wonderful, kind, loving man that I had married 12 […]
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Whom Do I Ask Now?

A number of years ago, a close friend of ours called to let us know that his daughter-in-law had died of breast cancer. His son was left with two young […]
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Why we have to be educated

Three weeks ago my husband had an episode (like a seizure but we’re not sure yet) and the doctor who saw him (at a major teaching hospital) did not know […]
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Widower/former LBD caregiver

My wife, Balinda, died six months ago. She was originally diagnosed as having LBD with Parkinsonisms in January 2012. She was diagnosed by a neurologist at Emory who she was […]
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Wonder Twins Raising Awareness

Abigail and Liliana are ten-year-old twins who have put their incredible talents together to raise awareness of Lewy body dementia! They were inspired to help the mission of LBDA in […]
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