living with LBD: the firsthand
Stay in Touch
Sign up for our newsletter to stay up on the latest advancements in research, events in your area and ways we can help support you and your loved one.
Read featured essays on caregiving, submit a personal LBD story for possible inclusion in our website, newsletter or other publications, and know that you are not alone! .
They Don't Tell You These Things My mother has had Lewy Body dementia for the past three years. I recently read an article in a newspaper advising how to care for a loved one with dementia. The...read story
My hubby and Lewy Body Mike was told he had FTD about 7 years ago along with AD, however, we went to a specialist 2 years ago that said he actually has FTD and LBD. My husband has always been a...read story
My father was a victim of LBD. I wrote this after a visit with him. A VISIT WITH DAD I've come to visit dad. He sits there in his chair. My father, the man I've known all my life - who...read story
My mom probably has Lewy Body Dementia. She was diagnosed with Parkinson's Disease but has symptoms more in line with Lewy Body. My mom often shakes when getting up to walk. Swinging her arms...read story
My Dad Susie Flower March 15, 2018 My dad is 75 years old and has been having active dreams and talking in his sleep for about 12 years now. He and my mom had to get separate beds as my dad was...read story
My Mom Gloria. What a wonderful caring, soul she was. My mom was born in Vancouver, Canada January 11, 1932. Mother of four children. Marianna, Dan, Cathie and me Lisa. My mom a very healthy woman...read story