living with LBD: the firsthand
Stay in Touch
Sign up for our newsletter to stay up on the latest advancements in research, events in your area and ways we can help support you and your loved one.
Read featured essays on caregiving, submit a personal LBD story for possible inclusion in our website, newsletter or other publications, and know that you are not alone! .
My Hero - My Grandpa Who do you think of when you hear the word hero? Maybe famous athletes, authors, or even politicians. My hero is a little more ordinary, my grandpa Long. My grandpa is a...read story
I SPEAK FOR MY FATHER: A DAUGHTER'S STORY Part 1: The Beginning Ayn Rand states that altruism should never be confused with goodness, kindness, to others or respect for others and...read story
Goodbye to My Steam Man Lewy Body Dementia (LBD) takes prisoners, and it does not discriminate. When LBD targets someone, there isn't a cure and no escape—it’s a one-way journey with...read story
All Too Familiar This terrible disease was all too familiar to my family and I. Almost two years ago, my mother, who was only newly 52 at the time, was diagnosed with LBD. My family...read story
Cats, Babies and Other Dimensions As my mom lay dying in her hospice room, a little kitty curled up at her feet, leaving a warm spot at the bottom of the bed. I had never seen this kitty before...read story
Blame it on Lewy? I wrote this story for my father and for all those who are sadly misdiagnosed. I lost my father to something horrible that changed him from a strong, brilliant, handsome man into a...read story