LBDA's Virtual Communities
Internet Discussion Forums
A place to provide support and guidance as well as share information and resources. Membership is limited to care partners of those living with Lewy body dementia.
A place to provide support and guidance as well as share information and resources. Membership is limited to those living with Lewy body dementia whether diagnosed or seeking a diagnosis. This group also offers a weekly virtual Zoom based support group.
Living together with Lewy is an LBDA-sponsored Facebook support group for those living with Lewy body dementia (LBD) and their care partners. The goal of this group is to meet the needs of people who are newly diagnosed with LBD, those who have early symptoms of LBD, and those who anticipate a diagnosis of LBD. In addition to providing understanding and support to one another, members focus on topics such as maintaining independence, collaborating on care decisions, and promoting living well despite LBD. Both people living with LBD and their care partners are encouraged to join to unite into one group with mutual respect and shared insights.