While dementia with Lewy bodies (DLB) is a common form of dementia, there is still a great deal to be learned about the best treatment and care of the disease. One vital gap in LBD research is a test that confirms the underlying biological signs of the disorder in a living person. ‘Biomarkers’ are urgently needed to increase the rate of early, accurate diagnosis and will also help advance development of new treatments. But finding these biomarkers in LBD requires a network of many researchers across many sites working together (called a consortium), using one common research protocol and standardized approaches to study a large number of people, ultimately combining all of their data together for analysis.
To address this major gap in LBD research the National Institutes of Health has awarded a $6 million, 5-year grant to create the first US-based DLB research consortium. In addition, the Lewy Body Dementia Association is proud to fund the annual meeting of the consortium to further strengthen this critical, new piece of LBD research infrastructure.
This major advancement in the LBD field brings experts from 9 sites across the U.S. together to work towards the following goals:
- To conduct a national, coordinated study of DLB.
- To systematically collect clinical, biofluids and imaging data from a large number of people with DLB.
- To establish a large cohort of people with DLB readily available for possible participation in additional clinical research studies.
- To provide broad access to the unidentified data and materials to the greater scientific community in order to speed research advances.
Dr. James Leverenz of the Cleveland Clinic (and chair of LBDA’s Scientific Advisory Council) heads up the consortium and is joined by LBD experts from Florida Atlantic University, Rush University, Thomas Jefferson University, University of California San Diego, University of North Carolina, University of Pennsylvania, University of Pittsburgh and VA Puget Sound Health Care Center/University of Washington.
All 9 sites are actively recruiting people with DLB for this new, national study. Anyone interested in participating can learn more here.