What is this study about?
The purpose of this study is to collect clinical information, brain imaging scans, and biological samples from people that have dementia with Lewy bodies. This information will help researchers gain a better understanding of the biology behind LBD.
What is involved?
Participants will be enrolled in the study and have annual study visits for several years. This allows for researchers to collect vital information and samples over time as the disease evolves.
Participants will have an initial assessment that includes an MRI and a DaTScan. The study coordinator will provide further information as to what the study entails.
Who can participate?
Those that meet the following may be able to take part in the study:
- Has a diagnosis of
- probable dementia with Lewy bodies (DLB) or
- mild cognitive impairment that is suspected to progress to DLB
- Parkinson's disease dementia
- Has a study partner who is able to attend study visits
The study will be conducted at the below locations:
|State||City||Academic Center||Study Coordinator||Email and Phone Number|
|CA||San Diego||University of California, San Diego||Ece Bayramfirstname.lastname@example.org
|FL||Boca Raton||Florida Atlantic University||Marcia Walkeremail@example.com
|IL||Chicago||Rush University Medical Center||Alice Negronfirstname.lastname@example.org
|NC||Chapel Hill||University of North Carolina||Jessica Ferrall|| email@example.com
|OH||Cleveland||Cleveland Clinic Lou Ruvo Center for Brain Health||Anna Sturtevantfirstname.lastname@example.org
|PA||Philadelphia||Thomas Jefferson University||Ana Boncompagni||Ana.Carolina.Boncompagni@jefferson.edu
|PA||Philadelphia||University of Pennsylvania||Tram Pham||Tram.Pham@uphs.upenn.edu
|PA||Pittsburgh||University of Pittsburgh||Donna Simpsonemail@example.com
|WA||Seattle||VA Puget Sound Health Care System/University of Washington||Skye Challener||(206)-277-3073|
National Institutes of Health and The Lewy Body Dementia Association
Still have questions?
To learn more about the study or find out if you are eligible to particpate, please contact the closest study site listed above, or Anna Long, Study Coordinator, Cleveland Clinic at 216-445-1155 or LONGA2@ccf.org.