May 2012 Newsletter

Book Proceeds from May 8 and 9 to Benefit LBDA

Bethany Porter is mad about what she terms “madness” in the long-term care industry.  Her new book, 625 Days – Memory Care from the Inside, highlights quality of care issues facing memory-impaired individuals living in the Assisted Living environment in the US. The Kindle launch of 625 Days is being paired with a giving campaign that will benefit four charities in May.  On Tuesday, May 8th & Wednesday, May 9th 50% of all proceeds from Kindle sales will go to the LBDA.

The following excerpt from 625 Days addresses appropriate care plans, which provide tips to families about improving ‘resident-focused’ care.

Resident based care simply cannot be accomplished without the help of what I (and many others in the industry) call a “life story”. Anyone suggesting they provide Resident-focused or Resident based care should be collecting a myriad of information from loved ones in order to create a care plan that revolves around the very spirit of the person. Without this crucial information, how can it be done?

Visit for more information about the book.

Webinar Now Archived – Basic Estate Planning: Securing Your Future

On April 18th Miles Hurley, an elder law attorney and member of LBDA's Board of Directors, discussed the importance of estate planning during an LBDA-sponsored webinar.  He gave expert tips on how best to approach the uncomfortable but critical subject of estate planning for you and your loved ones. Mr. Hurley also explained how estate planning can help protect assets in the event that long-term care is needed.

Watch the webinar on LBDAtv.

Advance Care Planning, a new tip sheet from the National Institute on Aging, part of the National Institutes of Health, describes steps you can take to ensure that your wishes about medical care are known.

LBD Stories — Of Memory, Mah Jongg, and Matzah Balls

Jason Rubin knew something was wrong with his Mom, but he wasn’t sure what it was. Tasks and activities that she had done for years with ease now suddenly were a mystery to her. But it was the 1990s, a time when few people had heard of Lewy Body Dementia and LBDA did not yet exist.

No family should have to face LBD alone. Read more of Jason’s story and why he supports LBDA.

Social Media Acts as Cyber Shoulder

Did you know that caregivers look at 70% more web pages than most people? And that they consume a vast amount of social media resources? That certainly explains the popularity of LBDA’s Discussion Forums and our Facebook and LinkedIn pages. Social media helps busy caregivers easily connect with others when their caregiving duties may not allow for face-to-face social time.

Learn about how social media is easing the loneliness of caregivers by reading more from

Health and Wellness Information for Older Adults

Looking for reliable health information on the Internet that is not trying to sell you anything? is a senior-friendly website from the National Institute on Aging and the National Library of Medicine, both part of the National Institutes of Health. With nearly 60 health topics, more than 150 health videos, plenty of frequently asked questions (FAQs), easy quizzes and more, is a great place for trustworthy, up-to-date information about older adults and health.