March 2015 Newsletter


Advocay in Action: LBDA Voices Support for New NIH Policy 

Federal regulations require research studies to be ethically reviewed to protect human subjects. Each study must be approved by an Institution Review Board (IRB) for this purpose. LBDA has joined its voice with eighty-six other organizations via Leaders Engaged on Alzheimer’s Disease (LEAD), in support of a newly proposed policy by the National Institute of Health to allow for a single IRB of record for multi-site studies.Read more. 

LBD Story: It is well with my soul.

Read the story of how one Caregiver learns to become selfless and finds peace in losing her mother to LBD.

FAQ: Why is a differential diagnosis important? 

A recent frequently-asked question on the LBDA Forums was “Why is it important to get an actual LBD diagnosis? My doctors don't know much about this disease. Can't they just treat my loved one's symptoms without worrying about the diagnosis?” To learn the answer, read “Is it LBD or something else?”

Volunteer Continuing Education Poll

As a member of the LBDA Volunteer Team, you have been oriented into LBDA’s volunteer program and have taken role specific trainings. We are now working to develop continuing education topics to better support our volunteers and in turn provide the best support to the LBD community. Please provide feedback on this topic by participating in this poll. Click here to participate.

Leg-It-For-Lewy 5K Run/Walk 2015

Saturday, October 10, 2015, has been set aside for the second annual Leg-It-For-Lewy 5K Run/Walk. While the primary walk will be in the Atlanta area, you are encouraged to host an event in your home town. In response to the many requests we got for the first Leg-It-For-Lewy, we are exploring more ways for people to participate virtually. If you want to organize a run/walk for Lewy, please contact Stay tuned for more information!